Morning! Hi Wendy and Lynn, thanks for the kind words!
Wendy the pain yesterday was because I stupidly forgot to take my pain medication! Usually it's fairly well controlled. My issue is really the side effects of all these drugs!
Lynn I have asked to see the Palliative nurse again, I want to see if she can suggest anything else so I don't need to be a walking pharmacy and hopefully I won't have so many side effects! I do worry a bit about what these drugs are doing to my Liver! Especially when you consider I will be on these long term! The pain is unlikely to suddenly disappear!
Anyway today's meeting is about clearing my head a little, being honest about how I really feel. She might not be able to change anything but hopefully she can help me feel less alone in all this...........except for my amazing online buddies, who really do keep me going. So THANK YOU! xxxxxxxxx
You sill girl but I can understand about the drugs as to what they are doing long term. Before the Cancer I was already taking 11 tablets a day for High blood Pressure and Type 2 Diabetes so the Tamoxifen makes it 12 now :)
I hope it all goes well for you in the meeting and it gets sorted. GOOD LUCK!!!
Sorry Sal, I get confused about the different roles of all the people you see! I hope the visit went well anyway and you have a great and relaxing weekend.
Morning all, now I can see straight I can add a little more to what happened yesterday! Well I think basically I blubbed, I got angry, I told her exactly how I felt and I said out loud things that I had kept to myself for months, because I didn't think they were appropriate to say!
My lovely nurse, sat and listened and told me that I was allowed to feel the way I felt and that she couldn't solve any of the things BUT she could listen and she would never judge me! She allowed me to blurt out things that I have avoided for so long! The more I spoke the better I felt!
It wasn't all tears I managed to have a giggle with her too. In fact she was in stitches! Apparantly I have a certain wit about me, which keeps her entertained. In fact she suggested I started doing a blog, as a way of letting out these feelings! Never thought about doing it before but it might be an idea!
Anyway I left feeling exhausted BUT like a huge weight had been lifted. Now I just need to get an appointment with the Palliative nurse to see if I can swap my morphine drugs for a Fentynl patch! Just so it's a couple less tablets to take! Hospice nurse said it was a good idea as it would be 2 less tablets for my tummy to deal with!
Oh and I must share my one BIG NEWS STORY from yesterday. I went in to a shop which was quite warm as they all are, I found a few things so went in the very warm changing rooms. Tried it all on and then went to pay.............wait for it.............I DIDN'T HAVE A HOT FLUSH/SWEAT!!! In fact over the last 3 days I think I have had 2 sweats! Slightly worried that I shouldn't speak too soon. BUT I never seem to have good things to share, after months of dripping with sweat day and night, this is something worth celebrating :-)
Well that's bored you all, now your day can only get better ;-)
Hope you all have a great Saturday. Xxxxxx
Gay haven't heard much from you this week. Hope it's because you have been enjoying your week off! (I think it was your week off) Time seems to fly by these days! XXXX
That sounds like a very positive session Sal. My bro had fentanyl patches rather than morphine - he reckoned that his head was clearer on them and because it's continuous release there's a very even flow of drug throughout the day/night. Good news on the sweats too shhhh.
My daughter works on developing vehicles like the patches for carrying drugs. She's currently working on injectible microbeads that will carry doxorubicin directly to liver tumours. Completely irrelevant but I'm very proud of her.
LondonLass, that's great - as you so often tell us - it's good to get it all out! I think a blog is a great idea - you have a way of resonating with everyone and I'm sure a blog would be helpful to those reading it as well as being an outlet for you.
The fewer sweat sessions is definitely something to celebrate - and you know, even if that situation isn't a constant - it is still good news to know there will be times you get some respite from them!
Wishing you a good Saturday too!
Kacang - your daughter sounds fantastic - an unsung hero in the cancer battle - you should be proud, indeed!
