AWAKE.........

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  • Thanks , bless you! Daughter found a baggy woolly hat helped, and also invested in a baggy stretchy ‘tube’ which gave her some hanging down fabric (there must be a name for them?) when she lost her hair (3 times for her bless her) 

    Hugs xxx

    Moomy

  • Night might fruit loops, thank you for being wonderful people......

    sending sleepy fairy dust to all who wish some

    Hugs xxx

    Moomy

  • Hi

    I agree I've never been so cold 

    Snoods scarfs  are brilliant for neck warmth and can be pulled over head if you suddenly chilly in house and no hat on Blush outside I'm using bamboo beanies with knitted head bands or one of pull on walking hats over beanie . 

    Glad to see you feeling well enough again to post . 

    Enjoy your Christmas with your family ..show the girls the Norad  Santa tracker site brilliant for little ones .

    margaret x

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • Wishing everone a peaceful night 

    Margaret x

    One step at a time and ...Breathe !
    xoxox
    Margaret
  • Hi Fruitloops, been off the site for a few days, still dealing with exhaustion and deafness. No builders now till Jan, just shower to deal with. Have private appt with ENT Jan 9, hope she can sort me out.

    Did not do concert, went for a meal with DH instead. After all, it was his birthday. 

    Sang carols at chemo unit instead. They asked us to sing loud for the poor patients who could not leave their rooms Disappointed relieved

    Love to all, but special hugs for , , , . . Sorry if I missed anyone. Xxxx

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • Sweet dreams all

    only 4 sleeps- thats if  you actually do sleep!! 

    Xx

    Tinker bell xx
  • Hope you are feeling okay , I am struggling with tiredness, however it could be fatigue - I just go so tired, fall asleep like I have been drugged, its like I am unconscious .... but only for a few hours.  I am moving the time I take my letrozole... in case this as anything to so with it, normally take before going to bed hahahahaha okay around 3.00am -4.00am - this is when I feel more awake then any time of the day.... so moving tablet time 'in case' it is the tablet causing this (originally took at night to sleep thought side effects.... maybe it is a side effect keeping me away hmmm).

    Fruit Loops, I am going now, got to wrap up an electric grill I've just sold on ebay - talk about 'how mad am I .... this side of Christmas hahahah' .... would be better time spent writing Christmas cards owww 

    I'm going... I'm waffling - Sleep Well Fruit Loops - Nighty Night xxxxx

    I'm hoping this makes sense - only my mind says one thing and my fingers type whatever they like x
  • FormerMember
    FormerMember in reply to seaspirit44

    Hello sea spirit thank you for cuddles lister gives you one and everyone and I give you all cuddles. When Is ent appointment hope they can  do something and bless Bet you all did singing justice 

    I hope this doesn't come depressing hope not but I'd anyone like myself not feeling christmassy I'm not dunno I'd it's because my first year diagnosis and previous years If had weekend off from work I would be going out dancing night away drinking bit too much drinking cause all medication on on and no dancing because well I can walk but not well can not do clubbing sober as if people bump into me and I fall over I'm at risk of pathological fractures. Or I could be anxious about hospital appointment on Christmas eve with medical oncologist see what they say

    Sorry about moaning on bit fruit loops felt below today =( hot my letter  for physcolgist appointment its mercy month day after my birthday xx

  • Dearest ,

    You're not moaning, you are saying the truth, and you know what, with all you have gone though really would anyone be looking forward to Christmas.... okay you could if it was, let's say, made to go and have a relaxing bath, doing your hair and going out for the day or night... or both.... but no, with Christmas comes so much stress and pressure.  We can all be 'yahhhy Christmas is coming' - but the true meaning of it has gone, it has disappeared.  

    You know, I reckon in years gone by if these diagnosis were know how we know today, it would all be different, friends, neighbours, relatives would be saying 'you do nothing, concentrate on getting yourself sorted out, you work on your treatments, or recovery etc and we will organise Christmas!!' - I do, I think they would..... you might with this be feeling Christmassy.... but its not like this, it is pressure, pressure, pressure, get this, not that, traffic here, queue there, till not working, not in stock, money going like its out of fashion, credit cards melting..... 

    So no, no, its not you.  If I am honest how I feel, well you know, I can't be, if I did I reckon I'd start crying.... I am 'pretending all is great, all is lovely, and wanting to make everyone else happy' (maybe doing what I'd like them to be doing for me... and then I wake up.

    If you push yourself to smile, to be happy it really will help you... dancing and partying well leave that for another time, work on just having a laugh at whatever you can - I'm sure it will help.

    Right, I'm off to bed, hope everyone is sleeping.... go back to sleep Northern xxxxxxxx

    Owww and your Christmas Eve appointment will be all add to your distress.... and try this....

    I'm hoping this makes sense - only my mind says one thing and my fingers type whatever they like x
  • FormerMember
    FormerMember in reply to WhatHappened

    Whars happened 

    Thank yoi for your kind woeds =) and that quote is iso true, ivd been laxk sleeonronifgt was just drifting off when lister woke up ar dirst meowing rhen started scrarchinf my bed so ice ket him theoigg the kitchen and our bsck passage way je needed toiket bkess him as family we share everything dor meal me and siblkngs dk secrer santa bless my mum she was like i havent for snythibg for yoj yet i was like don't worry jjst box kf lindor will do 

    Hooe everykne else has had better sleep thsn me

    Xxx