AWAKE.........

Morning everyone have a good Sunday, glad you had a lovely break Sal LondonLass safe journey home

sorry about your cat it’s awful when you loose a beloved pet.

GBear WhatHappened and anyone else who finds it hard to sleep, it’s a nightmare but if we manage a few hours it’s better than nothing 

....what magnificent typos!!!so funny...sorry but it cheered me up!!

i do know what you mean about people expecting you to be all better....thank Goodness you do have people around you who understand.I am very fortunate too,I realise that...xx

Hello everyone as promised I said I would share my painting I was doing as a tribute to my friend and for his wife's birthday 

Hi GBear

What a lovely lasting tribute to your friend - I am sure his wife will love it. Also wishing you well for Tuesday - try and keep calm, I know it’s difficult and easy to say but you must.

Take care, be strong.

xx

Hi 

I haven't had hyperbaric oxygen treatment, but I was given home oxygen when I came home from hospital after my PE as my SATs were so low! 

I use it at night at 3 litres per minute and the way I feel during the day has changed completely! I have MUCH more energy (although nowhere near what I had before the secondary diagnosis), I don't fall asleep at the drop of a hat during the day, I don't wake gasping for breath in the night, I don't grunt in my sleep (apparently) and I don't get all the headaches that I had before! 

I still don't sleep for very long  - I normally don't try and get to sleep until about 2:00 am and am almost always awake by 7, and I do wake several times in that time, but that is probably at least partially due to the steroids that I take. I still feel that the quality of the sleep that I get is a lot better than it was! 

I don't use it during the day now as my SATs are better  - still low, but good for me given my lymphangitis. I had the nurse from the respiratory team visit the other day to check whether I was using the oxygen properly and give me any tips and make any referrals. When I described what I was like before the oxygen, she immediately said that I have all the symptoms of sleep apnoea, which I believe you have as well. She said that oxygen CAN sometimes help and in my case, it seems to have done. She's referred me to the GP for further tests. It might be worth mentioning it to your GP - I feel SO much better now I have the oxygen!!! 

I also have the Denosumab injections. My dentist knows about them and is very careful about doing anything, even the deep clean as my teeth are very soft and rubbish and my gums bleed easily. However, I have had a filling replaced whilst on it  - the dentist had to phone the oncol team to get permission and they went down the least invasive route - he only did minimal drilling and put a filling in that he said might not last for ages, but would do the job (it's now been in over a year and is fine!)  I have mulitple bone mets - spine, ribs, sternum, pelvis as well as wear and tear type degenerative changes in my lower spine, but so far I've been lucky that although they've grown, they are not causing any major issues at the moment - some pain, but livable with! Whether the deonsumab has helped with that or whether I just have strong bones is another thing!!! 

I don't have any side effects from the Denosumab and the jaw necrosis thing doesn't worry me particularly, I just take more care of my teeth than I did before and anything suggested is discussed by my dentist with the oncol team to reduce any likelihood of it happening! 

Hope my experiences help a bit! 

Hi everyone! 

Back from Canterbury, where I had the most lovely weekend at the ballet. The 3 Musketeers is a very entertaining ballet, with just the right amount of comedy, drunkenness, cross dressing and swash buckling... 

The weekend was completed by a surprise late birthday pressie from my OH, arranged by my gadding partner and a couple of the dancers at short notice as it was obviously a bit of a logistical nightmare to organise given my recent run of hospital visits and their touring schedule! They had arranged a surprise birthday meal between the matinee and evening shows yesterday, to which 30+ of the dancers came and celebrated with me! Given that they all have their own routines for between shows and need wigs, make-up and costumes fitted, it was lovely of so many of them to come! 

It came from the fact that I couldn't think of anything I wanted for my birthday. In general conversation, I had said to my OH that I would like to leave an amount of money to the company so that dancers could have a party to remember me once I'm not around! He decided that it would be better if I was there as well, which is true I suppose! 

Fingers crossed that my immunity is still not TOO bad at the moment as I've spent a lot of time in the theatre in large crowds and also hugged FAR too many dancers on FAR too many occasions during the weekend! Just call me a chemo rebel... 

Hugs for everyone who needs them! 

Aww what a lovely surprise for your birthday. I am glad you had a wonderful time.

Totally wonderful !!! In the true tradition of The Ballet...just like a fairytale xx

, what a wonderful birthday surprise.

Hope everyone has had a good weekend. 

Good luck to anyone having treatment or appointments tomorrow.

I am off to see the eye specialist tomorrow, hope he can put my mind at rest as to what the optician saw on my eye, not looking forward to it, I never seem to be away from the dreaded place.