AWAKE.........

Hi LondonLass

Sorry, been AWOL again recently! 

Line is going back in tomorrow, swiftly followed by chemo  - well, might as well use it when it's in! 

Despite apparently stable CT results, I'm struggling a bit with my lungs at the moment, and I know that things are progressing again - this happened last year before the present chemo - I got lung symptoms a good couple of months before anything showed on the scans. We shall see if the same happens again! Still have the oxygen at night time, but not yet needing it during the day at the moment, so that's good! 

Sorry you're feeling a bit, well, not right! I'm sure that part of it is a sort of grieving process now that life has changed for you - it'll take a while to get settled into the new you! Fantastic that you have used some money to treat yourself - good for you! 

Big love and hugs to you! 

LondonLass.  I do sympathise with you, my official last working day with my employer of 18 yrs was 31/1/19.  It feels very strange for me to be no longer an employee. 

My pension is being sorted out finally ( been waiting since July 2018). 

I have applied for a disabled person’s railcard as they say “ every little helps”..,. 

. Great news that everything is stable

. I had a CT scan Monday ( with a very tight cannula in my wrist owww). The scan was on the Thorax and Abdomen.  I also have a DEXA Bone Scan on Feb 14th. See the Oncologist on 22nd Feb and get the results. As I have radiation damage to my lungs, from initial BC treatment, I’m a little worried. 

Mon Feb 11th I visit Guy’s Hospital and get a fitting for the Sleep Apnea : Mandibular Assisted Device. 

My previous Eye Consultant has retired, so now I will make another appointment for the laser treatment to remove build up of cells. I need to email the new consultant’s  secretary and let her know I’m on chemo and blood thinners. 

Still getting daily Tinzaparin stomach injections, feel a bit like a pin cushion

I have been on Capecitabine one year this month. Wish my sleep was more on an even keel. 

Judith xx

Hi Cathy () great to hear from you but sorry t9 hear you aren’t doing so well. Hopefully today will fly by. I have a little excited chap here who is VERY excited about spending time with Aunty Cathy.........

.Hope me he’s a good boy and that his company reminds you that you are not alone and that we are all thinking about you!

Really hope it goes well my friend, love you xxxxx

Sending you a gentle hug , i am sorry to hear about your news and i do hope the oral chemo helps. At least there was some good news out of your appointment and hopefully you will get more good results. 

Hi , sorry to see you are struggling with sleep, I can totally empathise, I wish I had a solution! Sadly I don’t.

However I have found that not stressing about it seems to help. I don’t need to get angry with myself, if I don’t go straight off to sleep so be it, I will catch up with sleep at some point! Usually when I sit down to watch a tv programme in the evening. 

LP will be with you for your results on the 22nd Feb, that’s the day I have my mammogram, NOT looking forward to that! But I know it has to be done! 

Keep going Judith, even with all these appointments and tests and treatments you seem to be doing great! I for one am very proud of you., xxxxx

.

Sending lots of Love and Hugs to all. Whatever you are up to today I hope it’s as Good a day as it can be!

I am hopefully heading out for a swim after I have walked Bella.Then I think an afternoon on the sofa might be in order! 3 hours sleep isn’t quite enough to keep me going all day!! 

Take Care xxxxxxx

Hi ladies just to let you all know I have started a post about another meet up! We are looking at March 23rd or 30th in Birmingham! 

Anyone interested please reply on that thread! Xxxx

how exhausting, all thise appts! Good luck with the scan result xxx

Well,I have swallowed my first dose of capecitabine .......really hoping this works !

jmp .....I see you have been on it for a while , which gives me hope as the Dr and pharmacist were very hot on side effects ! Every time I start a new drug I am convinced I am going to get awful side effects , then I don’t get many , then I find the drug has not worked , so my mins is in free fall .....

weeblemum, hope your line insertion and chemo were drama free .....

sal, I will reply on the meet up thread  , it is good you have a plan to be in Birmingham , it gives you something to look forward to......today I feel as if April is a long way away ,and for the first time I am doubting how long I will be here ( I will give myself a stern talking to ) 

best wishes to everyone , as usual , and many thanks for the support .......x

  I'm sorry your results were not what you wanted and I really hope your new regime works well for you .I think your spirit is amazing you are so brave and also think of others all the time I'm sure you will enjoy  many many meet ups xxx