AWAKE.........

Hi , firstly may I apologise for not replying to you when I was on here earlier this morning. As you might know the site is still playing up and I wasn't able to read the messages, I just had the very very annoying grey lines!!

I feel bad because it sounds like you had a rough night and I could of chatted to you. I hope you managed to get back to sleep eventually. Will be thinking of you tomorrow when you go for your results. We have a cute little mascot called LP (Lucky Pants) who we send along with people when they have results or scans, anything that worries them. LP can't guarantee a good outcome but he will guarantee to put a smile on your face and remind you that you aran't alone. The AWAKE thread and everyone on this site will be with you every step of the way! 

Sending you......

A Welcome Hug! 

I hope you will pop back on and post anytime, time or night! Hopefully next time we will be able to see your post! Apologies again xxxx

Puzzler sending good luck and love for the best results xxxx

- good luck for today!!!! 

YAY!!! 

The Blue Badge is mine!!!! 

I'm really surprised as I thought that they were going to reject me...

Would be doing a happy dance right now, only my breathing is not allowing that today!

(and the site won't let me psot a happy dance GIF either...)

Thank you to all of you who sent me good wishes for my CT result today. It means a lot tome . Unfortunately it was bad news . He focused on how much tumour there is in my liver , I need a biopsy of that “ urgently “ . He glossed over “ something odd in the spine “ which might not be much .......he gave me the CT report to read , which I did not do until I got home and that mentions a lung nodule ........I can only say I feel sort of “ stunned “ .

i have got a friend visiting weds and thurs and I feel if I can go out and about with her it will give the news time to sink in ......

i have no idea how to tell my daughter who is so happy with my new granddaughter , I don’t want to ruin this happy time .

the plan is IV paclitaxal , has anyone anything non scary to say about that ??   I am desperate for any crumb of hope !!

best wishes to you all !

x

puzzler in so sorry for your news and send you massive love. I'm sorry I don't have experience of this or treatment but I'm sure others will soon.  It must be such a shock at the moment but a treatment will soon be planned based on the biopsy. I'm so sad for the timing of this with your new granddaughter  Maybe you could tell her when you have a treatment plan to explain as well  But I'm sure she will want to know and support you and you'll deal with it together with the  joy of your granddaughter to enjoy and help you through xx i know secondary treatment is so good now I'm sure it will be positive xxx

@puzzler I'm so sorry xxxxx

Hi Puzzler, so sorry to hear your news.

I'm having Paclitaxel, 18 weekly doses rather than 6 x 3 weekly. I'm on number 10 this week. I've lost my hair again but other than that it's been fine (I know everyone's different) so much easier than the FEC-T I had the 1st time round. I was panicking when my ONC suggested it but he said "I give this stuff to 80 year old ladies and they're fine on it" so sort of dared me into it LOL.

Sending you massive hugs.

Oh puzzler that's such crappy news! I can't think of anything to say other than we're all here for you as you learn to live with it. 

I had paclitaxel as part of my primary treatment. It wasn't too bad. In fact, it was much easier than the wicked red stuff. (Doxorubicin in my case, although epirubicin is more common in the UK). It's also apparently much easier than docetaxel, as the doses are smaller. I recall at the time the onco told me it was a very effective chemo drug. So that's my contribution to not being scary lol. 

I know it'll be difficult to tell your daughter, but think how hurt she'll be if you don't. I'm sure she'll want to be there for you. 

Wishing you all the very best.

Oh , I'm so sorry to read your news. As Leolady would say, bleep bleep bleeping bleep.

Massive squishy hugs xx