AWAKE.........

you are so right! Falls rehab became the big thing in the last few years of my job as an OT and if I had had my way it would have been up and running in a few months, using a couple of days a week at our local day hospital and it would have worked! But no, I got stopped at every turn. Then the day hospital (in spite of winning a Kings Fund award,) got run down and closed, in the meantime I retired, now they have a falls co-ordinator but nowhere to run any rehab. Crazy!

Hugz xxx

Night night fruit loops, sleep well and stay safe....

plenty of sleepy fairy dust, help yourself

hugs xxx

Dear LondonLass

Thank you for my gift , the mask fits great and is very comfortable .

your so kind . 

Love 

Ruby Rose  

Hello fruit loops

I've just caught up with all the posts 9 pages of them since I last been on

Puzzler I'm shocked at your oncologist for saying all gat to you glad you stood your ground ans your not feeling not too bad after chemotherapy on Thursday sounds as like you been busy since please rest if you  need to

Optimistic I'm ai sorry but I'm late to the party but hope you had lovely birthday =)

How is everyone else doing? I hope anyone who has had appointments since I last been on want well and those coming up 

Sorry for quietness mood has been up and down like a yo yo recently.  I also keep.getting jabbing pains in the tight breast (one with where the lump is) its lime jabbing pain I've also been trying chase up scan results and yesterday when I rang oncologist secretary they had been done 30 minutes before I rang do she was going tell my oncologist Tuesday morning they are in, and ring me she said wednesday this week is white choca with appointments that is when they do reviews. So have fingers crossed for me fruit loops.

Anyway I beat gp to sleep again.miss you all xxxxxx

Good morning......

This is a strange day. My last oncology appointment. Where did nearly five years go? I know I have been lucky to have three/ four monthly checks for five years. My very last appointment is the mammogram at the end of October and then I move onto the ' once a year ' mammogram plan. But from now on I have to take responsibility for my own checking........it's a scary world isn't it?.....

.....I hope you get your results soon. No wonder you have good and bad days when there is so much waiting. I think it's very common to have breast pains when you're waiting for results and appointments....Even now....I get odd pains just before my oncology and mammogram and I never have to wait. I bring my results ( all but biopsy and PET scan) home with me..  In previous years it worried me but now I've realised it's probably only scar tissue and I have also realised that for the last few months, even that has been less. When you start treatment I don't think anyone imagines how long just straight forward healing takes. Over four years......it's a long time and being TNBC, I haven't even had to battle all the complications caused by the hormone inhibitors. Anyway.....I do feel lucky. Peripheral Neuropathy and some permanent nerve damage is a small price to pay for life and I know lots of you are battling secondaries which puts my aches and pains into total perspective. I wish I could offer you some suggestions to prevent your pain but sadly I haven't found any. For a few weeks an increased dose of a different pain killer  seemed to work for me but it hasn't lasted. I don't think I'll go back to pain management........,....

So on a lighter note.. ...LondonLass does LP want to join me for his final excursion? I'd love to treat him if he does. Luckily he won't have to quarantine now when he gets home tonight and the hospital at Angouléme has very thorough precautions to prevent any Covid19 being spread. Not only did we have to wear a mask but on arrival our hands were sprayed with sanitizer without our touching the container and we were given new masks to change into. Only one in three seats were available to sit on. The rest were taped over or labelled.......do not use. I am sure LP will return well!

I have tried to load a photo I took on the Summer solstice while I was away.....I had woken early and realised what I was watching. I managed to capture the sun rising over a 20 minute period. I think you can see the sequence. Sunrise itself is bottom right. Sun just behind tree. It was inspiring........

Have a good day to all.

Take care. Stay safe.

Love Karen

Beautiful photos Lacomtekp, and wishing you luck at your appointment. I’m sure it will feel very strange after all these years. 
Agree with you re the 1 metre plus Violetsniff, people forget the plus! Definitely need reminding again and again. A friend sent this, I think I’d go to this cafe!! Love to all, HFxx

I love that,HappyFeet1!!so sweet xx

@Lancotempk....what beautiful photos and what a good idea to sequence them!

and ...so lovely to hear from you always.Hoping this next stage will be ok for you Xxx LP is on his skateboard to get to you....xx

Lacomtekp Good Luck at your last Onco appointment! Hope all goes well. LP is already on his way and will probably already be there by the time I finish writing this....

Hope he behaves himself!! Fingers crossed all is well. Oh and just to reassure you I think we are all more aware of aches and pains just before an appointment! Weird isn’t it! Xxxxx

Interesting posts ( as usual ) from  folks with experience of management

I am sure staff in the NHS are doing their best , and can be exhausted , the problem as I see it is not with them , but with management.

I worked with a dedicated and experienced nurse who got promoted to ward " manager " ( sister ?? ) and suddenly had a large budget to handle , she was clueless .

we had lots of " meetings " , which often turned out to lead no where ,except frustration from nurses who wanted to nurse . One time I was sitting up patients , giving them cleaned teeth etc ready for a meal , when matron came in the bay , and in front of the patients , berated me for " doing an HCA job " and saying she did not pay me off the top of the pay scale for this nonsense , when there was computer work to do .

Panorama last night was very interesting .

I have a letter telling me I am due a consultant review today , it was cancelled at 1600 yesterday with no explanation . This is one week after he told me I should stop treatment and agree to " go home and deteriorate " ….with support …...what support ???

It appears I might get chemo again this week , fingers crossed , the community nurse rang and was great , really empathetic , made me feel better .

Good luck to all of you trying to sort out the admin as well as coping with scans etc ….best wishes to all for a good day , I am so grateful for all the support you give me x

Morning all,

wishing everyone who has any appointments of any sort the very best of luck and positivity today.

Lacomtekp, lovely photos, hope you don’t feel too bad today at that appointment.

hope you get an appointment soon

, you go, girl! Glad you seem better this time and hope you squash that consultant!

Hugs to all xxx