Stopped taking Letrozole for 2 weeks advice please very worried

hi doglady, i am using Exemestane  .i am not having much side effects.No weight gain and no hot flushes.yes someday have pain in my knee.Body temperature goe very cold.i was size 16 but now 12.i am using since 5 months

Thanks for your story, I have to contact the BCN on 14th Feb, I know my Dr will not prescribe Femara as it's too expensive, that's how I got Accord originally and then subsequently Dr Reddy, but it certainly won't  hurt to ask.

S x

I have not heard very much about Exemestane, I will do some research, thanks for your imput.

S x

Hi I’m also on letrozle to after all my treatments but iv just been told stop taking it for 4 weeks as iv got a lot of joint pain I’m also very worried I can’t sleep I’m thinking the worst all time as my body as took a lot with all the treatments you go through it must be ok to stop for a bit but it doesn’t stop you worrying hope things go ok with you xx

Hi or the Exemestane like the letrozle iv just been told to stop my letrozle for 4weeks as iv got joint pain really bad x

Hi I have just been told I have to take letrozole so worried now as have joint pain before I start as have had 2 spinal ops so after reading this will chat to my bcn to see what she says .Hope your pain eases xx

Hi I have been taking letrazole since 2009, 8.5 years, following a mastectomy. However although l will officially stop March 2018 l have been suffering for several months & so decided 12 days ago to take myself off them,(never seen the consultant in years as l was discharged/transferred after getting non Hodgkin’s lymphoma).

Following treatment for that l only have 3 monthly reviews now as all seems well there.

However the “suffering” l mentioned has been hair thinning & loss by the combful just recently & while l could put up with that it’s the extreme joint pain that has developed in my left hip in recent months that’s become the main issue.

Whenever l pull myself off the sofa/ get out of the car l have to stand for seconds & steady myself before l can move as the pain is gripping BUT within seconds again l walk normally, climb stairs etc

This has only happened in recent months so l am blaming the “prolonged” use of letrazole.

BTW my pharmacist alerted me about my use for more than 5 yrs & following written contact with my consultant he recommended continued use until March 2018.

Now, 12 days later l feel a little more comfortable but it’s probably too early to say whether l have done the right thing.

Sleep, or the lack of it, has been a big issue too but the last few nights have improved so watch this space.

Feeling jittery about reaching this point as it’s felt like a safety net cum comfort blanket....have l done the right thing

What are SE’s

Hi  

SE's is the abbreviation for Side Effects.

Warm welcome to the Mac Community - Steep learning curve isn't it :-/

G n' J

Hi I have been on letrozole since 2009 originally for 5 years but then the oncologist said 10 years I am due to finish in 2019 but am thinking this year will be the last the fatigue is quite bad but I am suffering from mouth ulcers which the pharmasist says is caused by the letrozole I think I have had enough