Good evening everyone
I have seen two Macmillan TV adverts this evening, as well as lots of adverts on their Facebook site - and this website - for Brave the Shave,
This is encouraging people to raise money for people affected by cancer by shaving their head - it has fostered a climate where people think it is showing support to people who have lost their hair by doing this too.
Even my own daughters offered to shave their heads when they knew I was to have chemo and lose my hair - talk about brainwashing!
I can't think of anything that would have made me more upset than to see them lose their hair too.
I have pretty much powered my way through 8 cycles of DC and had every side effect it could throw at me, one stay of a week in hospital, and four times they called me in because of various things, two bad reactions in the chair - but the one thing that reduced me to tears wasn't being told I had cancer, it was being told I would lose all my hair in the second week of the first cycle.
And I don't need to tell any of you how hateful I found having huge handfuls come out in the shower (and I had short hair so hadn't thought it would be so horrid).
And then your eyebrows and eyelashes go - and your femininity feels like it's being stripped away bit by bit.
Frankly I find people who say they will get their head shaved as support, and that say they do it to "share" our experience haven't a clue! They might choose this, we haven't chosen it - and wouldn't.
It may sound over the top to some of you, but I find this whole campaign offensive, insensitive and patronising - particularly seeing people smile while having their head shaved, and people cheering. I didn't smile, and my daughter and husband didn't feel like cheering when they shaved my head.
Ok I'm cool with my look now - the very shiny head (not a short razor clipped look) - but I would prefer not to have had to experience any of this.
If you agree - please let me know.
I have messaged Macmillan previously and never even had a response. I've commented on Facebook under their posts in the past urging people to find fun ways to raise money (and there are so many) and not to do this for me.........and there is always a huge response in terms of "likes" and comments from people in our reluctant community.
If people are with me - maybe we can convince Macmillan to stop this barbaric approach to fund raising. Either like this post or put a comment of support please - if you don't agree, that's fine, no need to do anything!
Well - that's my rant over - you might have noticed I feel a tad passionate about this!
A friend of mine had long hair, but rather than shave it she's had a lovely short cut and donated the hair for wigs.
For me, it's almost taking the p1ss, like making a joke of what we go through. Chemo isn't funny, neither are the side effects. And losing hair is one of those.
There are so many other things to do - walks, swims, cycles - all of which are healthy too.
Karen
I cant believe thy are still doing it, when so many of us cancer survivor are against it. I was fortunate I didn't need chemo, in end, but I know the thought of having to lose my hair made me more unhappy than the cancer, if that doesent sound ridiculous . Ive always had short hair but when I retired I felt quite rebellious you know the older women shouldn't have long hair thing I grew mine, and dyed it mahogany as my natural brunette was greying and dark hair nor flattering on older skin. t took me 2 years so to have to lose it again would have devastated me. I really think they should listen to those who have had cancer, surely they are a group for us, I never liked that horrible wilderness type advert either, that happened the year I had mine. it used to make me feel very uncomfortable, it was so bleak and scary, perhaps they should ask us our ideas and let us design a campaign. June
June M
I couldn't agree more with absolutely everything you have said! I have just completed 8 cycles of neoadjuvent chemotherapy and am having surgery on August 23rd followed by radiotherapy and herceptin. Losing my (very short styled) hair has been incredibly difficult to cope with; I hate how I look and how cancer has stripped me of my physical identity. Yes, I know it's only temporary, but it's such a visual reminder of being ill and the trauma of protracted treatment. I genuinely am unable to understand the rationale behind the 'brave the shave' campaign and find it quite distressing that others assume it's 'supportive'. I can not thank Macmillan enough for their tireless work and support, and to those who raise funds for the Charity; however I find this particular initiative totally insensitive and unnecessary. Apologies if I have offended anyone with my personal views, not my intention at all. It's been a tough few days dealing with the 'Uncle Fester' doppelgänger I see every time I look in the mirror and the less shaved heads I have to see the better .....
Here's part of this poignant poem by Nick Robinson, BBC journalist, it sums up for me, how people who have a cancer diagnosis and other's terminology may cause upset to those under going treatments.
Hi I totally agree with you. I'm lucky I avoided chemo but if I had had to have it the loosing hair would have hit me hard like you say it's part of been feminine and these people have not had to go through treatment or loose a breast so to shave hair for charity is easy if that's what you choose to do but that's it they choose to. I enjoyed your rant. X
I'm just so angry & disappointed that Macmillan have failed to act following the comments on this thread last year. At the time, the initiator of this thread, Judy, had applied to be part of the the panel of patients Macmillan evidently take advice from when creating their advertising campaigns, and there seemed to be real hope that Macmillan would pay heed to the sheer number of people who are upset by this insensitive campaign. However, if the TV ad is showing again (I haven't come across it) then money is obviously being put before patient & survivor feelings.
The new brave the shave fundraising has had a lot of people talking about and I've yet to hear or read a positive mention. My personal feeling is its thoughtless selfish and so oooooo insensitive. I'm about to embark on another round of chemo ..my 4th over 20 years. I'm terminal and one thing that really effects me is the hair loss. This advert is so upsetting I hate it . I can't believe that Macmillan could be so stupid to make an add like it and not expect a bad reaction from the real.people it effects. If my family said they will shave their hair of to be 'brave' I would be sickened..
It's also about time someone from Macmillan explained why they think it was good to joke about such a painful part of Cancer treatment..It's disgusting. I will NOT be supporting you on this one.
...a very hurt cancer patient.
You are right - I did apply, but there has never been anything I have seen or been invited to about Brave the Shave.
I'm personally gutted - and have no idea what it will take to get our comments taken notice of. I really thought we had made a break through - but this TV campaign is even worse with the whole 'photo shoot" thing. Show me anyone who is having chemo and hair loss and wants a photo shoot.
The whole campaign is fundamentally opposed to what Macmillan stands for - in terms of supporting people with cancer. I know fundraising is crucial - but really wish they would focus on other creative ways that do not cause distress to the very people they are there to help.
I will see if I can make some personal contact with someone about this. I am now a volunteer trainer (about to start delivering training to HR and line managers about the implications of cancer in the workplace. Diagnosed Oct 2015 and just had my final surgery 2 weeks ago! So will try and use my internal contacts to see f I can meet with someone face to face. Watch this space! In the meantime anyone upset or unhappy or who doesn't agree with the campaign, keep commenting as the more we have the more evidence I have.
Judy xx
"Those who don't believe in magic will never find it" Roald Dahl
Hello and thanks to everyone who is commenting in this thread.
Please be assured that you have a direct line to Macmillan - we're passing all your comments on to the Brave the Shave team. I'll post more tomorrow and try to explain our approach to the this year's fundraising campaign.
M.
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