Glioblastoma stage 4.

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Hi,

I was diagnosed in May this year, surgery in June and straight into radiotherapy and chemo for 6 weeks which i finished 3 weeks ago. It's been quite horrendous dealing with the after effects of the radiotherapy, as the medical team warned but coming though the otherside now.. I'm starting 4/6 rounds of chemo next week.

I'm not sure why I'm posting , i guess I'm hoping it might prompt me to process what's happening because atm, I can't belive it and still feel they've made a mistake, even though I feel so awful most days.

I can't let any of the feelings I feel out. Can't scream. Can't shout, have a few tears now and again but stop any tell emotion from showing. I tried emotional support from local hospice but it wasn't a good experience for me.

I've been told there's no cure and its very aggressive so I know the outcome. How do I leave my beautiful family, grandchildren that are my life.

Thank you for reading.

Audrey2796cc 3 months ago in reply to Leeluu

I miss my lovely boy but wont adopt a cat until I know if tumour returning as need some time and certainly would have oldie!
I Did acting on stage and hope to return if feel ok

Mainly ommunity theatre and non profit and do panto in local working men’s club and local city lit college classes. Obsessed really.

paid career was research nhs patients views

and did phd in soap opera! Archivism is fascinating I’d love to hear more

Audrey2796cc 3 months ago

I understand and feel the same. I feel it’s impossible one moment and inevitable the next. It’s one day at a time and not my lifestyle and I wish I could resume my life before this. Thankyou for your words lovely

Alex26 3 months ago in reply to Leeluu

Thank you for your messag. I am trying to understand how it could will on me.

Alex26 3 months ago in reply to Audrey2796cc

Good to hear about your experiences. Pleased you were able to worked me. Thank you for sharing

Leeluu 3 months ago in reply to Audrey2796cc

A phd in soap opera - wow! I actually had to google it to see if I understood the definition - that’s a broad spectrum of shows. How did you narrow it down, I wonder..?

I dealt with old photographs specifically, from the 1850s on. I miss it sometimes, but at least I came out with great friends and some decent pub quiz trivia!

Leeluu 3 months ago in reply to Alex26

Hi Alex26, hope your surgery went well ️ and that you’re able to do the things you had planned

Alex26 3 months ago in reply to Leeluu

1 week passed since surgery.

Got dressing sorted later Friday

Looking forward to being more normal

Another 2 weeks before I can wash my hair!!

Leeluu 3 months ago in reply to Alex26

I remember not being able to wash hair after an op, it was a greasy mess after two weeks, I feel for you ️

Audrey2796cc 3 months ago in reply to Leeluu

PhD was on first lgbt narratives in British prime time soap opera and older audiences views. I was fascinated by new storylines which were not current in other dramas and had to change attitudes and awareness ( sometimes!)

it’s available online

was a lot of work but hsd lovely supervisor

yours is fascinating and would love to know more

Audrey2796cc 3 months ago in reply to Alex26

Oh yes the hair washing is a delight when finally alloyed! I used Johnson’s baby shampoo first time 2 weeks after very gently… now can wash regularly but still tender on the scar and hair came out on wound / still doing that. However looks rather stylish ! Top of head hair still there and sticking up

hope you not getting too much headache mi find paracetamol helpful

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