Hi, I don’t actually have a formal diagnosis for what is happening with me yet so I hope it is okay to talk in this forum. I am a woman in my twenties and In June I began experiencing some dizziness, lightheadedness and minor headaches. I went to the doctors who ran lots of blood tests, all came back normal other than I was extremely deficient in folic acid and vitamin D which the doctor thought was the cause of my symptoms. I took prescriptions of both of these for months but the symptoms persisted so I went back to the doctors. At this time I also noticed a small lump in the back of my neck which I got scanned via an ultrasound, I was given the results quickly that this was a normal lymph node and nothing to worry about. However because my dizziness persisted my gp told me that eventhough he thought this was nothing serious he would refer me for an MRI scan of my brain to rule anything sinister out. I had the MRI on the 29th December and honestly was not worried at all as in the months of waiting for my appointment to come through for the scan my dizziness has significantly improved and the headaches are minor and do not happen too often, which I thought was the folic acid and vitamin D working. Having said this I received a call from my GP on the 3rd January to inform me that they had “found something on your brain, it’s localised to one area but we can’t tell anymore without further imaging”. I have been referred to a neurologist under an urgent referral and am awaiting additional imaging to confirm a diagnosis.
I am really trying to remain positive and hopeful that this will not be worst case scenario and will be easily treated. As I’m sure everybody here can understand though this is probing difficult and I am absolutely worried sick about what the outcome of this will be. I don’t really know why I felt the need to post in here I suppose just to maybe hear from people who have had a similar experience.
Thank you for your time.
HI Worriedme
a warm welcome to the online community.
I've said repeatedly on here that not knowing is a 1000 times worse than knowing. It's only natural to slip into "what if" mode so please don't be too hard on yourself here. It's a scary time and your worry is totally understandable. I hope you're not kept waiting too long for your appointment with the neurologist..
In the meantime, please steer clear of Dr Google. He's a scary dude and will only feed your worry. Focus on the facts.
Can i suggest that you note down any fears and concerns and questions that you might have and take those notes with you to the next appointment. They can act as a script and make sure you don't forget to ask something that's important to you. It might also be an idea to take someone with you to that appointment.
This group is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.
There's also the MacMillan Help Line ( the number is below) and you can reach out to them for support and guidance too.
For now though, please try to stay as calm as you can (easier said than done I know) Take each day as it comes.
Sending you a huge virtual hug and lots of positive energy
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Thank you, Annie, and a belated Happy New Year to you too. May 2025 be kinder to us all.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
