Ileostomy no movement at all all day

I can fill mine 8 times in a day or just twice. The contents are just as variable!  Sometimes full during the night and somtimes empty in the morning. No change in diet or anything so im as confused as you!

Another similarity is I'm drinking 2 litres (which I never did) and now have a poor appetite. Just had to pause chemo due to low sodium. Hope things resolve. 

Thank you for your reply. 

It is for sure more variable on the chemo. And usually does fill overnight. 

So strange, just never had it so silent. 

Hopefully it behaves overnight. 

Sorry to hear your chemo is on a pause. I hope the sodium sorts itself out. And you can get back in time the swing of things .

I have never been one for salt (never salt anything ) as I really don't like the taste. But have taken a notion for gravy so I think that's what is ticking me over. And strangely like the we chip sticks they are strong with vinegar but I'm sure that's what's keeping mines up. Of course the output has a big impact too. 

Hello Stacey

I have a loop illiostomy and had chemoradiation about 6 months ago.

I have never had zero output, but it would go very quiet when I had reduced food intake prior to radiation treatment.

If you feel well and the stoma looks normal you could try some small meals every few hours and lots of fluids. Try the easy digest stuff like rice, white bread and some chicken. Also a warm shower around the stoma site and a little gentle massage to encourage output.

Macmillan also have a stoma forum, some very experienced members might have more suggestions.

If you eat today and no output tomorrow again I would contact the Doctor for further advice.

Hope things get back to normal soon.

Ally

HI

I have a colostomy - I have had no activity during the day on occasion when I've been eating little, but that has usually happened when I'm also taking medication like Ondanestron while on chemo. If you taking any new meds for chemo symptoms, maybe just check the side effects (some can cause consitpation). But as you say, if you feel unwell or it continues get checked out. Look after 

Thank you so much for your message. 

That sounds like a good plan. 

I will see how we go overnight and if no activity tomorrow get a wee check. 

Thanks so much  

Thank you Babotie. 

To be fair I did have alot of antiemetics so may well be this. Just expecting the same as before.  But my appetite has been a wee bit off for a few days.  

Thanks so much for your reply

Having an ileostomy is sonething I can definitely comment on. I have had one for 11 months and am still not used to ir despite researching and consulting the stoma nurse. Mine was an emergency since i collapsed of septic shoch and they removed a tumour. The thing about an ileostomy is thst it is quite different from other stomas. The output is unfortunately high and we lose electrolytes every day which need to ve replaced as ut us dangerous to have liw sodium and potassium. I was drinking plain water and was still dehydrated becayse i was not replacing them. I was then told i should be rakibg a hydration drink and not to just have water. So i put a but if fruit juice in water and gave rwo sacgets if Dioralyte daily. My levels are now great and i am not dehydrated. I now feel well and not faint breathless and fatigued. I have consulted the stoma nurses several times but they do not seem to fully understand  that an ileostomy us unique. I am now facing chemo for the first time and reading the pists i am concerned.  there will be iissues. Personally i would be calling the 24 hour line to get clinical input. Even if you know you are eatibg less and the output is less because of that. I have asked the stoma nurse at my hisputal to call me so we can discuss potential problems before my first round stsrts in 10 days. 

Hey thank you for your reply. 

It sounds like you had quite the time..I am so glad that you have now found some balance. 

And I agree. There is for sure some lack of knowledge regarding ileostomy In the community. 

I am happy to report my stoma is now active. 

Chemo if for sure a daunting experience. Yesterday was my second and I am home with a 48 hour pump too. 

What I will say is that my output did increase but was nerve unmanageable. I unfortunately am lactose intolerant so my diet is extremely limited. I tend to stick to bland stuff and it keeps my stoell controlled. I have been fortunate so far that with the full strength anti-emetics I have not been vomitting it so hard but try not to worry too much. I aim to have a good breakfast rich in protein in the mornings with white bread then try best to eat when I can. 

Few tips before your chemo: 

Have all your stoma things ready in bulk. The last thing you want to be doing is cutting them to shape when you feel lousy. I feel more in control having a good bulk ready. Wipes. Flushable toilet wipes and wee emergency kits on person and in the car. 

The hospital will also give you a good supply of dissolvable (the must be this for ileostomy) of immodium. So if things crank up you can take some control. 

I have experienced some trapped wind which is the worst. Peppermint capsules/tea some peptac liquid readily available are handy. 

I hope your chemo goes well. Tick off one cycle at a time. ️

Happy to report my stoma is now active..thank you all for your input/tips it was greatly appreciated.

Hope you all have a nice day

Stacey  

Thank you for your reply. So nice ofyou  to take the time. Glad you have activity.