Papillon Treatment

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Hi has anyone on here had the Papillon treatment?
I’m 4 months out from my treatment and a sigmoidoscopy has shown the rectum cancer is still there. My local colorectal team want me to have the big operation removal of rectum 6/7hours surgery and permanent stoma.Ive refused this operation so the doctor closed his file and my appointment was over.  I’ve got an appointment to see Prof. Mymint at Clatterbridge next week.  Has anyone else been in this situation? The Papillon treatment carries on working for 6 months so why the rush? The doctor I saw said he didn’t believe that it would make any difference.   All replies will be most appreciated. It’s a l lonely place when doctors walk out on you.