New diagnosis with possible liver mets

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Today it's been co firmed there is malignant tumour in my bowel that has potentially spread to the liver.  I'm absolutely petrified ... which symptoms a little bit of sickness 5 weeks ago to this.  Trying to stay away from google and no care plan in place ... everything feels like a waiting game.  I'm 46, a mum and trying not to spiral into panic

  • Hi  and a warm welcome to the board. Yes please stay away from google - it can be out of date and you’ll end up going down lots of rabbit holes - stay on here and the bowel cancer uk board. 
    I presume you’ve had a ct scan that has flagged up something in your liver? I had something similar and it turned out to be a harmless cyst called a haemangioma. These are apparently very common and most people go through life being none the wiser unless they have this sort of scan. 
    The waiting for scans and results is very stressful but bowel cancer is very treatable (even if there does turn out to be liver mets) and once you have a plan in place then things will honestly feel a bit better.

    https://bcuk.adidocdn.dev/Publications/Bowel_Cancer_UK_Your_Pathway_V10.1.pdf

    Ive attached a copy of the booklet that I was given at my first meeting which may help with terminology and treatments available. I was diagnosed in 2016 (if you click on my name then you can see my timeline) and I’m still ‘no evidence of disease’ as are the 2 ladies that I became firm friends with at the same time.

    We’re all at different stages of treatment and recovery on here and happy to support you through yours. Please ask if there’s anything you want to know - there’s no question too daft or embarrassing!

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • I really appreciate your reply .... I think the no treatment plan is the worst part.  Waiting and waiting is driving me insane.  I originally went to the doctors because I was having random bouts of sickness, they said its probably reflux or hiatus hernia and ordered and ultrasound ... that highlighted a lesions on my liver which prompted a CT scan .... and it's spiralled from there.  Until this week I had no symptoms of bowel issues at all.  It s a roller coaster of emotions and incredibly scary!  Can't help but think the worst!  The liver is concerning me more and need a treatment plan to focus on.  

    I'm trying to stay positive and focus on the advances in treatment and the good things they can do.  Just need it to happen and stop this waiting around .... 

    Many thanks

    Tarnya

  • I know this part is unbearable, but to be honest to get from GP visit to definitive diagnosis in 5 weeks is amazing. Bowel tumours are very slow growing, and lack of symptoms probably means it’s a n early diagnosis,  and for  liver lesions there are a range of treatments. It won’t be long until you have that definitive treatment plan, and the support of an expert team of , well, experienced experts. We’ve all been there, and what you’re going through,,and we’re here for you.

  • I am literally on the runway waiting to fly . But just want you to know my mum lived for 15 years after a spread to the liver was diagnosed.

    With the help of chemo she made it to surgery despite being inoperable initially .

    Will post this just now and speak tomorrow .

    Court 

    Helpline Number 0808 808 0000