New diagnosis with possible liver mets

Hi Gloryd96c2b and a warm welcome to the board. Yes please stay away from google - it can be out of date and you’ll end up going down lots of rabbit holes - stay on here and the bowel cancer uk board. 
I presume you’ve had a ct scan that has flagged up something in your liver? I had something similar and it turned out to be a harmless cyst called a haemangioma. These are apparently very common and most people go through life being none the wiser unless they have this sort of scan. 
The waiting for scans and results is very stressful but bowel cancer is very treatable (even if there does turn out to be liver mets) and once you have a plan in place then things will honestly feel a bit better.

https://bcuk.adidocdn.dev/Publications/Bowel_Cancer_UK_Your_Pathway_V10.1.pdf

Ive attached a copy of the booklet that I was given at my first meeting which may help with terminology and treatments available. I was diagnosed in 2016 (if you click on my name then you can see my timeline) and I’m still ‘no evidence of disease’ as are the 2 ladies that I became firm friends with at the same time.

We’re all at different stages of treatment and recovery on here and happy to support you through yours. Please ask if there’s anything you want to know - there’s no question too daft or embarrassing!

Take care

Karen x

I really appreciate your reply .... I think the no treatment plan is the worst part.  Waiting and waiting is driving me insane.  I originally went to the doctors because I was having random bouts of sickness, they said its probably reflux or hiatus hernia and ordered and ultrasound ... that highlighted a lesions on my liver which prompted a CT scan .... and it's spiralled from there.  Until this week I had no symptoms of bowel issues at all.  It s a roller coaster of emotions and incredibly scary!  Can't help but think the worst!  The liver is concerning me more and need a treatment plan to focus on.  

I'm trying to stay positive and focus on the advances in treatment and the good things they can do.  Just need it to happen and stop this waiting around .... 

Many thanks

Tarnya

I know this part is unbearable, but to be honest to get from GP visit to definitive diagnosis in 5 weeks is amazing. Bowel tumours are very slow growing, and lack of symptoms probably means it’s a n early diagnosis,  and for  liver lesions there are a range of treatments. It won’t be long until you have that definitive treatment plan, and the support of an expert team of , well, experienced experts. We’ve all been there, and what you’re going through,,and we’re here for you.

I am literally on the runway waiting to fly . But just want you to know my mum lived for 15 years after a spread to the liver was diagnosed.

With the help of chemo she made it to surgery despite being inoperable initially .

Will post this just now and speak tomorrow .

Court 

My Partner has just been diagnosed with small bowel cancer and liver. His symptoms started with loss of appetite and weight loss over 2 stones. Had numerous scans and currently waiting for a plan ..any plan! I am going crazy with worry whilst my poor Partner is suffering in hospital on a non cancer ward, so frustrating. This has all happened in the last 5 weeks. So worried that he is unable to take food and not strong enough for any treatment. 

My message Tarnya is stay focused and go on the NHS site for available treatments....there is hope!

Hi I have recently been diagnosed with stage 4 bowel cancer with spread to my liver.  I have had no symptoms either and this was only picked up after doing my first FIT test.  The waiting is the worst and I have had CT scan, PET scan and MRI.  I am now about start chemotherapy on 1 October as they need to shrink the liver tumors before they can operate.  I am terrified but I am willing to give it a go.  It takes time to get your head around it and you will be upset, angry and scared.  I have found writing down all my questions in a book very helpful, it stills my mind especially when I wake in the night and start thinking about it.  Look after yourself and know that everyone on here is routing for you. x

Hi. The waiting is the worst part. Once you get to the chemo at least something is being done. Best of luck with the chemo, hope it all goes well. My wife had bowel cancer and she had a left hemicolectomy and it removed the colon cancer ok. After a few months the cancer then moved to her liver and she is now having chemo to reduce the tumour size. For you, did they say what size the tumours have to be before they can operate. Thanks

No specific size.  They will re-scan after my 6 cycles every two weeks and then the liver surgeons will see if they can operate.  I have been told some are small and they are hoping the chemo will shrink or possibly remove them.  I have have one tumor which is very close to main arteries going into the liver and that is the one they are most concerned about but hope it will shrink enough so I can have surgery.  Fingers crossed.  I had my first chemo on Wednesday it is FOLFIRINOX or FOLFOCIXI 3 types of chemo drugs.  Two given in hospital and then home with a pump for 48 hours which will be removed today.  It was tough and I am very tired but steroids are keeping me up!  They use steroids as part of the anti-sickness treatment.  At least I am not sick.  I am just taking it one day at a time and not thinking about the road ahead.  Good luck to your wife hope her treatment is going well.  Take care