New here and looking for support , my husband has colostomy and has issues

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Hi everyone 

I'm not actually new, i joined 3 years ago when my husband was first diagnosed with rectal cancer . ( lost those log in details Face palm tone3‍♀️)

He had his op ( APER) 2 years ago and has just had his second year all clear Heart

He copes well with the colostomy on the whole . 
 , EXCEPT when he’s been drinking Cry when he has dreadful leakage  , leaves a mess everywhere and then leaks in the night too .

All this is bad enough at home , but on holiday it’s awful.

Recently we were in Greece , and somebody more or less pointed the finger at my husband in a holiday forum we belong to, posting about how disgusting the toilets had been left in a particular bar . 

I'm so ashamed . 

we’re due to go back there in a few months and I just can’t face it . I can’t bear this for the rest of my life . 

I have booked a review with stoma nurse .

hes very careful what he eats on holiday , avoiding anything spicy . But will not stop drinking .

Can anyone identify, and offer any advice please Pray tone1

  • It’s probably down to hubby 

    they ring him , ask how things are , and he’s says FINE Face palm tone3‍♀️Grimacing

  • Fabulous advice but please stay clear of puppy training pads although cheaper than incontience ones they contain chemicals to attract the puppy to the pad which believe me as a community nursing assistant seeing patients use these as a cheaper option has an impact of skin integrity.

    all those suggestions however are fabulous and I hope your husband and mind if needs a stoma will embrace 

  • Thankyou so much for that information  I shall bear that in mind for future posts 

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Good advice Karen. I hope he cleans his own mess up. Not doing so is a good way to lose friends (a pal of mine is in a similar position and no-one invites him out anymore). Less in = less out and I avoid pints and drink spirits instead. Beer and cider act as a laxative as far as I am concerned, so moderation is the key. The strips are Brava Elastic Strips from Coloplast and they are very effective; I'd be lost without them. Also, I find a loose and large T shirt worn in bed acts as a slip plane to prevent the stoma pouch from snagging on the sheet and leaking.

    Dulac

  • Hi  

    That’s really interesting, thank you. I wasn’t aware, and used to use incontinence pads in the past. Cost made me change to puppy pads, but I rarely have them in contact with any of my skin as I only use them while out of the home and on holiday. I’ve never had an issue with my skin, so I’m going to continue to use them on a very occasional basis as I’m on a very limited income, but appreciate this extra bit of knowledge which will make me take more care with them!

    Sarah xx


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    Cervical Cancer Forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Thats interesting Bradleyj.It was the stoma nurse who suggested I get the puppy pads.although I only used them in the early days on the bed and as I was wearing pyjamas they were never next to my skin.

    Kath

  • Hi  

    Yes, best advice is to get that stoma measured properly as leaks will always happen if the bags are cut too big.

    If the problem persists then a couple of other things spring to mind, maybe a couple of loperamide to slow things down?
    What about sachets to put in the bag that absorb liquid and make the contents firmer/more manageable?
    I got some samples from this website when I was having problems but didn't actually use them in the end as the problem got sorted, but maybe worth a try.
    https://opus-healthcare.co.uk/products/absorbagel-stoma-powder/ 

    Good Luck.