Neuropathy on oral chemo pills

Hi there, sorry that sounds miserable.  I have the neuropathy on Capecitabine, but so far just in hands. For the skin on the soles of your feet try MooGoo udder cream, it's recommended for skin issues during chemo. 

I would also let your chemo nurses know you have this side effect. 

Best wishes x

Sorry your hands are suffering. That must be difficult. I am using MooGoo 3 times a day.  I told chemo nurses last week and they said get in touch with GP. Will bring it up with them again next week when they phone me. Best wishes to you too

It's not usual to suffer Neuropathy with Capecitabine Tabs. alone. The Capox infusion is usually the culprit for this side effect. Sounds like Palmar Plantar - which affects palms of hand, & soles of feet - which Capecitabine can cause. I developed it in my 5th cycle - which affected my hands very badly, & slightly in my feet. I was in monthly contact with my Oncologist - who took me off the Chemo at that point. However - perhaps your dose could be lowered?

Best to get in touch with your Oncologist, rather than your GP. I doubt painkillers will be helpful. Moisture cream application 3 times daily helps somewhat, but not long term.

Once you come off the Tabs. this side effect normally stops immediately.

Best

Marianne

Yes that's true actually, it's the Oxaliplatin that causes my hand issues. The skin soreness sounds painful, I feel lucky to have escaped that so far. X

Agree with what's been said. The skin issues are a different thing from peripheral neuropathy... but plenty painful to be sure! I'd actually rate the soreness as more acutely painful. 

I was advised to moisturize like crazy. 

Yours sounds worse than what I experienced so I'd talk to your oncologist, they may need to reduce the dose. 

Thank you for that. Will talk to oncology 

Thanks. Sounds like I need to talk to oncology about this. 

Hi Suzie7

I’m so sorry to read about the Neuropathy problems. I hope you find some help and I’d definitely ask the Chemo Nurses.

I don’t know if it’ll help you but maybe try CeraVe Advanced Repair Cream. It’s a dark blue tube as opposed to CeraVe normal white/blue tubes. 

I had started using their ordinary SPF Moisturiser after it was recommended on here in early April and it made a huge difference to the very dry flaky skin which i’ve suffered from on my face for a couple of years. When I started on Capecitabine and radiotherapy on 1st April my dry facial skin also went into red scaly patches, and I’d tried Aveeno but no joy, so I was pleased that the CeraVe dealt with it brilliantly.

Then after the third week on Chemo tabs my thumb tips constantly split - so painful - nothing helped but after 2 weeks I bought the CeraVe Advanced Repair Cream - it seemed to numb the cuts slightly; it’s oilier than their moisture cream (a bit like foot balm) but a very tiny amount is sufficient. My heels are splitting too but that’s something I’m prone to and I’ve tried it on there too and it’s worked.

I’m dreading starting the CAPOX regime on 19th because I’ve read that Oxaliplatin can cause these problems too and if i already have it from the capecitabine then I hate to think what my hands and feet will be like! Until this afternoon I understood I’d be taking a higher dose of Capecitabine that I took over the last 5 weeks in Chemoradiotherapy but phew - still going to be on 1500mg twice a day!

Take care. x