My sister is 42 and around 5 weeks ago started noticing a significant amount of blood in her stools accompanied by pain in her abdomen.
she had her colonoscopy last week and they have found a large tumour approximately 12cm into her small intestine. To say we were shocked in an understatement.
they couldn’t pass the tumour so have scheduled an mri for next week.
she has had 2 ct scans before the colonoscopy and another one last night of a different area.
so…, her macmillan nurse called her a few days ago and said she needed the third scan. My sister asked if the results were back from her first 2 and she said ‘ yes those are back and look fine, we just need one of your chest’!
I’m not sure if my sister has heard her right and she’s told her the scans were clear or if she can tell her that without all of the consultants and surgeons checking them over? Would she have access to those?
im so worried at the moment and don’t know how to support her without coming across as overbearing and worrying her more.
iv been a tad full on this week with checking in with her, making sure she’s taken supplements that Iv got her and not eating too much rubbish. Which probably isn’t helpful at all.
how do I support her in this without being a nightmare for her?
any advice would be really appreciated.
she has a lot of pain to the right of her stomach although the endoscopy confirmed her stomach was fine I’m concerned that it’s her liver.
this is such a minefield of anxiety and unanswered questions at the moment.
Hi Budda84 and a warm welcome to the board. It’s lovely that you’re here to support your sister and hopefully we’ll be able to help and support you both through this.
The first few weeks after the colonoscopy are very stressful and usually involve a flurry of scans and meetings. A CT and/or MRI of the chest abdomen and thorax is completely usual. I had a CT which showed up something on my liver but an MRI showed it to be a benign cyst called a haemangioma which are very common and harmless.
Once there is a treatment plan in place then things will honestly feel a bit better. Bowel cancer is very treatable and there will be a tough few months ahead so be supportive but try not to over fuss.
Ive attached a link to a booklet that I was given at my first meeting which will give you an idea of what to expect treatment wise, terminology etc.
https://bcuk.adidocdn.dev/Publications/Bowel_Cancer_UK_Your_Pathway_V10.1.pdf
Hope this helps and feel free to ask any questions - there’s nothing too daft or embarrassing on here!
Take care
Karen x
Hi what a lovely sister you are! It's such a worrying time but it does feel more manageable once all scans are done and you have a plan. I had a CT of chest, pelvis and abdomen, all standard, then an MRI to check out a liver lesion that was benign.
I know my sister struggles with my diagnosis, particularly in the early days, but we have settled into navigating it together and things feel more normal as time goes on. I could sense her anxiety but knew it was coming from a place of love and concern. Am sure your sister knows this too. Don't worry either if she goes a bit quiet, I needed a bit of processing time.
Sending you both best wishes xx
I did have a conversation with her today and she told me to calm down a little, take a breath!! So I’m going to give her some space and let her process it all. I don’t want to make her more anxious by being on her all the time.
it’s so daunting isn’t it. I can’t imagine what you’re all going through. Just being her sister has me terrified.
It is terrifying, when I was first diagnosed I was convinced I was inoperable with no hope. I am now post op having mop up chemo. Treatments are so effective and your sister has youth on her side. This really is a very challenging bit when you know something is wrong but don't yet have all the information. Deep breaths, get outside for a walk if you can, distraction is key xx
What a scary time for you both!
I had a 12.5 cm rectal tumor. So very close in size to your sister's. My story is in my profile. I was diagnosed in Aug 2023, had radiation and chemo then surgery in Aug 2024. I'm now considered cancer free. Hang onto that possibility.
Your sister is lucky to have you.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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