LARS

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Six months after a colorectal operation I think I have LARS and am wondering if it is a condition that I shall

have to live with or if it might possibly get better?

  • Hi  It can improve over time but it can also be something that you have to accept as a new norm as part of your bowel has been removed. 
    I’ve attached a link to a really good talk from a gastroenterologist about regaining bowel control which may help 

    https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer-forum/f/general/232375/regaining-bowel-control

    If you google LARS there is some information on line and this leaflet is quite good too

    https://www.stmarkshospital.nhs.uk/wp-content/uploads/2024/01/patient-LARS-toolkit-pdf.pdf

    I’ll be honest in saying that I don’t have the perfect answer. I take a loperamide before my main meal but everything seems to make me really gassy at the minute. A food diary may help but I’ve not managed to pinpoint any trigger foods for me aside from a big meal sets me off on multiple toilet visits in an evening.

    Sorry I’ve not been much help

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hi, I contacted the hospital dietitian and asked for help to control LAR symptoms as some food types made it worse. They were a great help to me and I’ve been on a FODMAP diet for 3 years.

    It’s not a cure for LARS but it definitely helped me avoid the worst of the triggers.

    You may find it helpful to talk with your dietitian to see what they suggest for you too.

  • Hi  LoisG,

    I contacted the hospital dietitian and asked for help to control LAR symptoms as some food types made it worse. They were a great help to me and I’ve been on a FODMAP diet for 3 years.

    It’s not a cure for LARS but it definitely helped me avoid the worst of the triggers.

    You may find it helpful to talk with your dietitian to see what they suggest for you too.

  • I thought I had LARS at that stage but things continued to improve, especially the following 6 months, and now almost 2 years later things are back to close to normal (have stopped Loperamide in the last 3 months except if travelling). Keeping a diary of what food I eat and the outcome helped me see what was triggering it, also daily Buscopan and probiotics helps a lot, as did regular walking/running, kegel exercises (also stopped now). There are only a few things I can't eat regularly, and digestive enzymes can help there too. 

  • Hi,  , I too have LARS but tend towards constipation rather than diarrhea, which makes life very tricky. At the moment I am living on stool softeners, and desperately trying to find help with LARS which doesn't seem to be available.

    However this developed a year or two after the LAR, at which I did not have a stoma. Mine is complicated by also having oedema and lymphoedema, so I hope yours will resolve itself, as you are still quite early days.