Hi I'm new here

Phil12 1 month ago

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181 subscribers
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April 2024 I was fit healthy, walking 5-6 miles 5 times a week.

I had a stabbing headache and lost the use of the side of my tonque the thought was a mini stroke.

Rang 111 and in hospital having CT and MRI Scans. Found a mass in my sinus and had biopsy. A week later the result of the biopsy was a diagnosis of Lymphoma. Following Pet Scan it was DLBCL Stage 4 Lymphoma.

2 weeks later I started aggressive chemo with some nasty chemicals, 6 sessions, 3 weeks apart. Side effects probably not as bad as i expected but feeling unwell and massive fatique. Towards the end of the chemo I had to have a colonoscopy and a tumour was found in my lower colon.

Lymphoma chemo ended 9th October and I was in Huddersfield Infirmary on 4th November and the tumour removed. I was in for 18 days following a couple of post op issues.

I am now having more chemo for the colon cancer as a mopping up excercise.

The point of all this is the speed of diagnosis, treatment, retesting, the tumour op and the follow up chemo.

April 2024 to now, The NHS are truely magnificent.

You have to go with the flow with all the testing and treatment as they know what they are doing. It a rollercoaster ride with ups and downs

Now in remission for the Lymphoma with future scans etc. Hopefully the same with the colon tumour

Capt Noglos 1 month ago

Thanks for sharing. You have had a very difficult journey , which is not over yet. I had Colon Cancer diagnosed in Oct24, and am now going through a chemo mop up treatment. Sounds similar to your most recent experience. You have a positive approach which is a lesson to many. Stay safe. Nigel

Kareno62 1 month ago

Hi Phil12 and a warm welcome to the board. 2024 was definitely a tough a year for you and having the op within a month of finishing chemo must have been hard. If you click on my name then you’ll see I had a couple of complications post op but as you say, you just have to go with the flow and remember my friends mantra of ‘This too shall pass’.

I also had my surgery in Huddersfield and my chemo in Halifax (is the lovely Jo still the oncology consultant?) Keep up with walking whatever distance you can manage and you’ll soon be back up and down those lovely hills come the spring

Take care

Karen x

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

Arial88 1 month ago

Hi Phil12 you have been through so much. My husband, also very fit, had DLBCL Lymphoma stage 4 in 2020. The treatment is brutal but he is doing amazingly well. In fact he was discharged this week! Just as I start my crazy trip with colon cancer! I am going in to Huddersfield on 27th for operation, husband had chemo at Halifax!

Completely echo your words. My colonoscopy was on the 14th December, 2 iron infusions, a CT and MRI later, I have an operation date, so quick and efficient. I cannot praise the NHS enough.

All the best for your continued recovery x

Phil12 1 month ago in reply to Capt Noglos

I think trying to be positive is a given as it can be overwhelming when thinking what could be ahead.

The chemo mop up doesn't seem too invasive compared to my previous chemo last year although I have only had 1 session

Phil12 1 month ago in reply to Kareno62

Wow. You've been through it in last number of years. You must have had a massive positive approach with all the complications.

I am on Oxaliplatin and orally Capecitabine started 6th Jan and having 5 sessions fortnightly for mopping up.

good luck for the future

Phil12 1 month ago in reply to Kareno62

Hi. Joe Dent is still inn Oncology, in fact I was speaking to her yesterday on a telephone appointment. Great person

Phil12 1 month ago in reply to Arial88

The chemo for the DLBCL is brutal but seems to work. my colon cancer came out of the blue and the speed of action from finding it to getting rid was exceptional.

Hope you have a really easy experience post op, the nurses are great. You will probably be on ward 10, try and enjoy the fish and chip Friday lunch if you can.

All the best