Post Chemotherapy following A.P.R., I.e fatigue , weight gain , balance issues , parastmo Hernia , when active have to sit , cant walk far , house bound mainly .My point I expected a better recovery than this .

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Post Chemotherapy following A.P.R., I.e fatigue , weight gain , balance issues , parastmo Hernia , when active have to sit , cant walk far , house bound mainly .My point I expected a better recovery than this .

  • Hi  and I’m sorry to hear that you’re struggling. How long ago was your operation and chemo? Have you had recent bloods at your GP to see if you’re low in anything? 
    I’ve just seen in another post that you’re struggling with your stoma? There’s lots of support on the stoma board if you want to post with any issues

    https://community.macmillan.org.uk/cancer_experiences/ileostomy-and-colostomy-discussions-forum

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • I feel very sorry for you John. How many sessions of chemo have you had and do you now how many you are going to have 

    I have terminal bowel cancer and over the last year have received chemotherapy every two weeks and at different times have experienced all of the things you set out.

    i am not one to offer advice but some of these will come and go.

    weight gain meant I changed my diet and now I scale for the last year 88.5 to 89kg

    fatigue I always have a couple of hours sleep in the afternoon and get 6 hours at night

    i have a hernia which cannot be operated in because of the cancer so painkillers 

    I have forced my self to walk as I used to walk 4 miles a day but I am limited to a mile now and can still use public transport  . I do use a stick to assist me. And a wheelchair for longer family outings.

    just a little about me I was diagnosed two years ago and had colorectal surgery and been in chemo therapy since and had my 30th session  yesterday

    i am 81 and as well as the cancer I have heart problems and have a implanted cardiac device (Pacemaker and defibrillator 

    I hope you a getting good advice from you medical team on overcoming your problems and you make a good recovery and get your mobility back. Good luck.

    Peter 

  • I had a different surgery but I too have struggled with recovering from surgery.  I had radiation and chemo prior to surgery.  

    Both the surgery and chemo take a lot out of you. It's a struggle to do what you used to do. When I woke up from surgery, I was unable to get out of bed on my own. I couldn't even swing my legs off the bed and forget getting back into bed.

    I had intense rehab (physical therapy and occupational therapy) to rebuild the skills I had lost. I continue to do the exercises I was given on discharge from rehab. 

    Coming home, I barely got around the house with a walker and was using a wheelchair whenever I left the house.  Now about 3 months after coming home and 5 months after surgery, I no longer use the wheelchair at all and I'm easily navigating my house with the walker or a cane. 

    It takes time but you can get back to where you were. Be gentle with yourself and just keep moving at whatever pace you can. It gets better, this stage of recovery is very difficult.  

    Sending virtual hugs.