Hello, I'm Aidee. I had an APR about 15 years ago as treatment for rectal cancer 'just inside'. I have irrigated almost ever since.

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However, as I have got older (80 going on 81)  a) I have eaten a bit less, b) passed a bit less, c) have needed to decrease the amount of water I instill,  to keep from having uninvited 'overflows' later on each morning.  Is this normal? I haven't had contact with a professional who might know for years.

On a parallel but closely related thread, I had slowly creeping radiation damage around my lower pelvis which reached my bladder after  couple of years (not voiding completely - regular UTIs - prophylactic anti-biotics - regular self catheterisation -fixed)  and then later on it reached my lower small colon and the ileo-caecal sphincter which no longer limits the amount of bile that should be discharged into the large bowel.  This creeping radiation damage appears to have stopped, thank goodness.

As a consequence I feel the need to limit the amount by which I irrigate to avoid the irrigation getting too close to the said sphincter and the associated excess of bile to help avoid the above uninvited 'overflows'.  I don't think I'm being paranoid,  All practical views will be greatly appreciated!

If I can be of assistance to anyone else please just ask.  i will happily discuss ANYTHING.

Aidee

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I can't help with your question but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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  • Hi  and apologies for missing your post. I don’t think I’ve seen a lot about irrigation on here but you could try popping a quick post on the Ileostomy, Colostomy and Stoma support board?

     Ileostomy, colostomy and stoma support 

    If I’m honest the most information I’ve seen about irrigation is on a social media board a lot of people on there irrigate. I know it’s a long time since your hospital days but you could get hold of a number for your local stoma nurse and im sure they’d be happy to advise?

    Take care

    Karen x

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