Hi everyone. My husband has had colon cancer for just over 2 years now and it has now spread to his lungs. He is too weak and unsuitable for any treatment so we have been referred to the Palliative care team.
Hi Nikki_J
Welcome to the forum . My mum is at a similar stage . She is no longer able to tolerate treatment for her lung disease .
Although I have not had any contact in the community from a palliative care team . One came round the ward but no idea what they said .
Have the team been in touch with your husband ?
How are you holding up ?
Court
Helpline Number 0808 808 0000
Hi court xx so sorry to hear about your poor Mum. We have had our first contact with the Palliative care Team at our local Hospice. But I had to initiate it as the referral process took so long.
I'm not doing great. I've stopped working due to being so emotional. I almost think I've started the grieving process already.
Hi Nikki_J
I feel for you Nikki_J . I heard the term anticipatory grief and I think it’s very fitting in this situation .
It is different when it’s your husband and the pressure of work on top of that . You have a lot on your plate .
I personally feel once they are discharge from oncology there is a void and I have no idea what happens next or how to contact them . Apparently in the next authority they have a community nursing team who will come in and do all the work at home but it does not cover our area .
I can totally see why you had to contact them as it goes silent and we are left wondering where to go to for support . But I am glad you have managed to get some input and hope their support assists at this difficult time .
I will send you a friends request .
Court
Helpline Number 0808 808 0000
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