Hi there
I wondered whether anyone had any words of encouragement/experience regarding small lung nodules.
I was diagnosed with bowel cancer in 2020, have recovered from a number of major surgeries and chemo over the last few years and was really hopeful that I was done with it all! In May 2023 two tiny spots were found on a routine CT, my CEA levels remained low and so my consultant wasn’t concerned. In Aug 23, the two spots had grown a tiny amount and there were now three. CEA remained the same. I was given the option of
watching and waiting or chemo and I opted for chemo to be on the safe safe and proactive. After 3 months of treatment the spots remained unchanged- this was the best outcome or so I was lead to believe as they were deemed to be insignificant and indeterminate.
In May my CEAs had risen but were still in the normal range and as it had been almost 6 months since last CT, I was scanned again. The results of this CT showed that these little things had increased slightly - by a few mm.
I’m now due to have a PET scan and will be referred to the Royal Brompton hospital- specialists in heart and lungs. I’m now absolutely fearing the worst but hoping for the best.
I’m failing to understand why, if these things were anything sinister and related to the cancer I had, how they weren’t affected by 3 months of chemotherapy - that has proven to work. But, what else could it be?
Just reaching out as I’m struggling to hold it together today. Thank you
Hi CTP
My mum has had both benign and malignant nodules. She has had disease since 2016 and the lung is often notoriously slow growing .
They seem to gauge malignant tumours if they double in value so my mum had some that went from 2 to 4 mm . Once they got to 8 mm they did a pet scan . She had uptake and had one surgically removed . She previously has had a 7 mm nodule that was not cancer .
There are even treatments like radio frequency ablation . She had ten months targeted therapy last year to shrink things down which they did . Not she is excluded on the terms of just being too frail at 82 . She did not run out of treatment options although still has disease . It still does not cause her any issues . Other age related problems do .
They monitor carefully and intervene when required . This is her 81/2 years since the first nodule was treated but ten years since they popped up on the screen .
It did trouble me greatly in the beginning but now we just batter on regardless at this age .
Hope that gives you some hope but do go and meet with the specialist. It’s good to get all the information together to make an informed choice .
take care ,
Court
Helpline Number 0808 808 0000
All the best with your surgery Summersdad . You have had such a difficult few years .
Are you have keyhole surgery ?
Mum was home two days later . It was so much easier than the bowel if you manage to get keyhole surgery .
Take care ,
Court
Helpline Number 0808 808 0000
Hi Summerdad
iI am in a similar position to you only a little further along.
Picked up through the monitoring September then I chose to have the operation March 7th last year
Right top lob removed and segment bottom. In the bin.
I’m still improving There’s lots of support in the lung group
Good luck with it all.
Best wishes
Ann
Hi Court I'm due for keyhole surgery next week so hopefully should be good recovery. Thanks for support it always helps. Dave
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