I have recently been diagnosed with MAP - please can anyone help at all with what is the best next steps for me I am still young and they have advised the next step is key hole surgery where they remove my entire large bowel. Is there no way around this at all ? Is there nowhere in the world that can offer any treatment to sort this condition ? I am very worried as the last colonoscopy I had showed forms of high grade dysplasia in one of the large polyps removed so situation is getting worse. NHS has advised that this is best served by a risk reduction colectomy and ileorectal anastomosis. Has anyone undergone this procedure ? What is quality of life after this sort of operation ? Are there any complications . Wish you all the best and any advise will be much appreciated
