Any other renal transplant patients with bowel cancer?

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Hello all I’m new to this whole cancer scene however this is my story thus far

Back in October I was diagnosed with bowel cancer and advised that I need to have a right hemicolectomy. All checks were done and during the course of several scans and cameras where the sun doesn’t shine they discovered I had a huge substernal goitre that is 12cm across ( apparently that’s very big) pressing on my oesophagus and too big to remove via the neck. The other issue I have is that I am a kidney transplant patient and of course the donated kidney is in my abdomen. So my local hospital decided that all this was too risky for them and sent me out of area where my renal unit is. All tests repeated again as different trusts, but major concerns over the anaesthetic. However I had the operation 29/1/24 and still awaiting full histology. They hope it hasn’t spread - it was near the liver - however my kidney has gone to sleep and still to wake up and my renal levels are now not good at all. As if that was not enough I am now being treated for sepsis, resulting in the bowel going back to discharging in a totally uncontrolled manner and I am still in hospital hoping desperately that at some point in the near future things will return to something like normal for me.

i said it was complicated!

  • Hi  

    Hope you got a good nights sleep In hospital . Gosh you have been through such a lot .

    I am trying to remember if we have had some people through with transplants . I certainly have a friend who has a stoma and has a double transplant but the stoma was not due to cancer but was a recent surgery .

    However I do think infection was part of his problem . It was over lockdown so can’t quite remember the details but I do remember a more protracted stay in hospital. Delighted to say he does very well with it now .

    I do hope things pick up for you soon and your kidney function comes back up to a better range .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Thank you it’s comforting to hear of your friend. Hopefully this will all settle down soon