Hello, I am a 66 year old Scottish grandma and although I joined this forum in 2020 and have benefited and taken encouragement from the many texts I’ve read , this is the first time I’ve actually posted .
My motivation behind his is to possibly give hope to someone who just might be at the start of being faced with the reality of a fairly advanced cancer diagnosis and the proposed treatment plan ahead.
In July 2020 ( right in the middle of Covid) my, normally well behaved, atrial fibrillation produced an episode with symptoms so severe I ended up in A&E. it soon became apparent once all the blood results were known that AF was the least of the Dr’s concern concerns ; I was extremely anaemic and required a blood transfusion. This was the red flag which initiated an urgent colonoscopy 2 weeks later. This procedure was not able to be completed as I had a partial blockage in my colon . The surgeon even then was pretty certain I had cancer .
This skilful man performed a right hemicolectomy by laparoscopic surgery 3 weeks later . I had the operation on a Friday and had as discharged home on Monday . No visitors were allowed due to Covid restrictions but the hospital staff were just wonderful !
I was always aware from the start and appreciated that everyone involved in my treatment care were giving of their best , using their skills , to help me and , as such, I was determined to do my best to recover and be as healthy as they could.
Although the CT just prior to my op showed no spread to other organs , it was normal accurate in being able to detect any microscopic cells and n the lymph nodes and it was just nlt the pathology results which could place the actual staging as Stage 3C, 2Nb M0 ie Stage 3 bowel cancer with 7 out of 21 lymph nodes removed having cancer cells . No spread to other organs.
I think as then referred to consultant oncologist who was in no doubt I required a course of chemotherapy to provide me with a ‘belt and braces’ cover .
I’ve always wanted to have as much information available on my condition but I was never interested in hearing about survival statistics. I’m a committed Christian and I truly believe that no one is a statistic and that each person is a unique individual and has their own journey plan in life .
I had 4 sessions of Capox chemo and, although I experienced the majority of the rather bizarre side effects , with the support from the colorectal team , my husband , my family and church family , I managed ok . One side effect I prayed I would not experience was sickness and amazingly and thankfully I was never sick once and ate my way through the dozens of meals daily delivered to our door by gloved and masked family and friends ! I didn’t much enjoy the daily fragmin injections I needed to give myself while on chemo and not able to take oral anticoagulants but I came up with a plan to ease the situation. I would set out on the table the 4 chemo pil , then the fragmin injection and then a lovely Thortons Continental Chocolate!!!!
I have had great follow up care all through this journey and to date all my scans have remained clear and bloods all normal
I opted for my big 3 year bowel check to be a capsule colonoscopy.. That was an interesting experience!
It was a bit if a shock when the results from that showed the presence of several polyps throughout the colon , one as large as 2cm . My surgeon as always was quick to respond and arranged an urgent colonoscopy where he proposed to remove all the growths .That was on Friday 5th Jan 2024 . He did explain that sometimes the camera image can be a little innacurate but neither of us could have predicted the outcome; the only polyp he could find was one … and it was only 2mm!!
So thats me discharged but should I have any concerns or new symptoms in the future I still have the availability of contacting the colorectal team .
i am so thankful , no words can really express , to every single one of the dedicated NHS staff : my wonderful surgeon to the lovely tea ladies and everyone in between, for their part in helping me back to being as active and healthy as ever !
if you are reading this lengthy speel and f you’ve been given a diagnosis similar to mine , please remember you are a one of , a unique mould ! So try to be positive and hopeful and take one day at a time !
God bless you x
What a wonderful post Rerouted . So lovely you have felt able to encourage others .
May I wish you ever success as you put this firmly in your rear view mirror and go forward with the confidence that you are Ned .
So pleased you were able to get some help from the forum over the years .
Take special care ,
Court x
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Thank you for sharing such a wonderful outcome and sharing hope.
If ever I needed an additional justification for Thorntons, your post is fabulous assistance to my inner self debate.
Thanks for this positive post.. just want I want to hear at the beginning of my treatment
Hello Madelaine, I was really encouraged by the posts on this site when I was just diagnosed .The information provided here can be trusted and all the little tips on how to make the treatment side effects a little easier were so valuable! Everyone"s experience is different, but you can usually find someone who is similar to you in diagnosis and treatment. I only have my experience to share but if you think I could be of any help, please just ask. Meanwhile take care and I hope all goes well for you. Isabel
Dear Rerouted
Thank you so much for posting your very positive post. I was diagnosed with similar T3 N2 (four of 21 lymph nodes affected) in December 2022 following a blood test that showed I was seriously anaemic. I though I had long covid! The diagnosis was a huge shock as I have never smoked, rarely drank alcohol, ate a very healthy high fibre diet, no red or processed meats, and exercised nearly every day of my life. I managed 2 out of 4 Capox rounds being hospitalised at the end of the second round with horrible side affects. My CT scan in August and colonoscopy in December 2023 were both clear. I have the next CT scan in a couple of weeks. I try to stay positive, but find the scans so stressful. Like you, I don't think of myself as a statistic. I am as fit and strong as ever and life is good. The NHS has been wonderful, I'm so grateful to them all.
Jane x
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