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Hi, I’m new to the community. I was diagnosed with bowel cancer in September 23 and had a resection, however I am struggling with constant worry it will come back and my first blood test after my surgery is showing high CEA levels despite reassurance from my cancer team nurses that this could mean anything and is unlikely to have reoccurred so soon I also have Crohn’s disease I’m looking for help with constant worry does anyone else feel like me ? Thanks

court 10 months ago

Hi Barney boomer

Welcome to our forum . This subject does come up here a lot and for good reason . It’s only human to consider .

https://www.workingwithcancer.co.uk/wp-content/uploads/2013/03/After-the-treatment-finishes-then-what.pdf
Some have found this a helpful read and also we have counselling through Bupa you might wish to access

Our helpline staff would give you the details .

But you are not alone .

Getting a feel for your own pattern does give you more confidence. Particularly with crohns . I have noticed patterns emerge with my mum . They would scan if a pattern of upward trajectory developed but frequently my mums would drop back down itself.
Take care

Court

Helpline Number 0808 808 0000

Kareno62 10 months ago

Hi Barney boomer Yes we all feel like that but each clear scan and test will push the doubts a little further back in your mind. You might find this helpful too?

Managing your follow up & CEA

Take care

Karen x

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

Josianna 10 months ago in reply to Kareno62

Managing your follow up & CEA Thanks for this link, I've just found it really helpful. I was diagnosed in 2021 and I still get very anxious when tests are due.