Hello newly diagnosed

Hi Cate64

I wanted to say hello and send you a virtual hug 

I found the first part the most frightening and also felt overwhelmed at times.  
Keep talking here if it helps 

Take care 

Thank you for replying, it’s the not knowing next bit really , I’m more terrified of the op than the diagnosis right now weirdly , it’s a rollercoaster of emotions x

Hi Cate64, can I ask you what operation you are having. I am now 7 weeks post operation of an APER with a permanent stoma. I am still recovering at home but Las week I met my consultant and he told me that they had removed all the cancer and the operation was a success. I will be monitored for 5 years. I hope everything goes well for you.

Good luck. PP23

Morning, sorry you find yourself on here as it is a clun none of us would choose to join, that said there are some wonderful people on here, characterised best by the wonderful Court.  Firstly, and importantly,  avoid Google, I realise you'll be desperate for accurate information,  but you won't find it on there and some of the stuff is both bizarre and downright scary.   Tell your surgeon your fears, s/he will be able to allay some of your fears.  You do not say what op you are having, there are people on here who will give you accurate and useful advice concerning the surgery you are to have.

In my case hospital was a whole new experience,  having been born at home I'd never been in one in my life except for visiting. I walked into the Liverpool Royal early on the Wednesday morning,  the day of the op and left on the Saturday afternoon,  this had nothing to do with me and was totally due to the skills of the team at the RLUH.   For me the 'star of the show' was the anaesthetist.  He was genuinely funny and did as much as he could to calm my nerves.  He asked what I was aiming for post-surgery, that was simple, 'To get back to Anfield with my wife & kids as soon as possible.' He obviously remembered that, the bed I woke up in faced a wonderful lit up Anfield looking beautiful against the black January sky; a nice touch.  

The surfery and recovery were much easier than I expected.   I managed to leave the house a week after surgery to celebrate the birthday of my twin sons.  I missed the Spurs match, only 10 days after my op, but was at Liverpool v West Ham a month after surgery, and believe me I'm definitely at the whimp end of any pain scale.  The worst thing for me was the heat of the hospital,  it was set at 'super sauna' level, I have never been so hot in my life and that includes visiting jungles in S/E Asia & Brazil. 

I was diagnosed mid-December, I remember being really irked by the radio keep telling me 'It's the most wonderful time of the year,' well it didn't seem it to me.  I wish you the best of luck and health for the future, where you are now is by far the worst time.

YNWA  (Thank you Trent for making it a great w/e)

Mike