New to group

3 replies
182 subscribers
388 views

Hi I’m new to this group so thought I would say hi.
im recovering from a hemi colectomy , I’m now 8 weeks post op.

I start chemo flofox on the 7th via picc line.

I was diagnosed with colon cancer T4 with 6 active lymph node’s. The tumour was removed successfully and I am currently cancer free. Unfortunately I’m high risk for it coming back hence chemo intense for 6 months . I’ve joined today so I can talk to people in similar situations and share experiences. I’m a very positive person with a positive attitude to this situation I find myself in and I’m busy putting coping mechanisms and strategies together to cope with the chemo . so helpful hints very welcome .

CrumpetsOrToast over 1 year ago

Hi Lillyliz .

I'm about a year ahead on this journey. I am a big supporter of mental and physical wellbeing being our best ally. I would also add patience and adaptability as things can chance in unexpected ways and without notice.

There's also a useful forum post about chemo tips Chemo care ! Top Tips:-

Talking openly about things whether to virtual community here or to friends and family should also give you redbullesque wings.

One of my biggest recommendations regarding chemo, tell your chemo nurses and oncologist all your side effects so that they can use their experience and expertise to adjust your treatment or offer solutions for you as you go.

Lillyliz over 1 year ago in reply to CrumpetsOrToast

Thank you . I will read the chemo care too tips.

Spider56 over 1 year ago

Hi Lillyliz

I’m nearly two years ahead of you on this journey. Had a LAR in November 2021, with temporary ileostomy. Followed by 12 cycles of FOLFOX (6 months) via PICC line. Histology was T3 N2 M0 with 11/23 lymph nodes and EMVI.

Ileostomy was reversed in May and I’m working my way to the new ‘normal’

All CEA blood markers have been good as have surveilance colonoscopy and CT scan. Latest CT scan this afternoon.

I’ll not say it has been easy and there have been hiccups on the way, particularly during chemo. However a positive attitude and being readily adaptable has helpped enormously.

I’m happy to relate my experience to you if you have any particular worries or concerns about your treatment and recovery. By far the hardest period was the chemo, and 15 months later I still have peripheral neuropathy in my hands and feet.

Wishing you well with the chemo.