Lynch syndrome

Hi Tia 

It’s a lot to process for sure . Have you reached out to lynch association yet ? One of our previous members was very involved with this and helped many people in the early stages of being diagnosed find more solid ground .

Macmillan has also linked in with Bupa to offer six free counselling sessions . The helpline has the information on 0808 808 0000.

A different set of circumstances but similar in terms of  dealing with future possible tumours is the stage 4 situation . One thing that helped my mum was the robust scanning that gave her a great safety net and saved her life twice . It was only went she was actually discharged and she had a further recurrence that got away a bit further that she hit more of a wall . Up to that point the robust scanning was picking tumours up at 2 mm and removing them after observation at a point whilst it was manageable and easily dealt with . 
Perhaps finding more about the protocol to see how they will keep a close eye on you might also help .  
Take care ,

Court 

Hi thank you for your response, I didn’t know there was a group the hospital just sent me a letter with my results and said the local  hospital will be in touch with me so I guess I just have to wait now and see what the plan is.

https://www.lynch-syndrome-uk.org/about-us

This is the group they formed and they have campaigned and supported in equal measures .

I can only encourage you to get in touch with them . They will inform and support . 
Take care ,

Court