Hello all.

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My name is John, I was diagnosed with bowel (rectal) cancer September 2022, December after MRI and tests had also diagnosis os secondary liver cancer.

After months of chemo I had liver operation/resection June 26.

After a few weeks recovery they just dropped it out than on last scans they found "a bit in my lung".

I was astonished and angry that they had not even told me they had found cancer in my lung.

It's only a small nodule they said as if I have not enough to worry about.

Now looking forward to more chemo and radio with operation on rectal.

I had managed to get my head around the rectal and liver together with all the side effects of tiredness and chemo fog as well as nerve damage to my hands(severe pain to touch and numbness and pins n needles)

This latest shocker with it in my lung has sent me into a tizzy, questioning. Is it all worth it and what will be my limit.

Hopefully I may find some answers.

  • Hi John

    If you click on my name I’ve had similar 

    I didn’t have chemo just a stoma then reversed then a blockage then a call back 

    Fast forward rectal cancer , then lung cancer two primaries. 

    I feel angry and I’m just waiting for the next scan to say they have found a third bloody primary. 
    And I’m known as positive  ha ha ha 

    You have every right to be cross and fed up. It’s unfair and you deserve a break from it 

    But do you know now I think I’m in a game of Whack a Mole   I am the mole and the cancers the mallet. I’m ducking and diving. Enjoying what I can when I can.

    I hope this gives you a lift  

    Take care and chat here if it helps 

    Ann
     ‍Art

  • PS 

    Most nodules are nothing to worry about. Just a little scar tissue. 
    Grin

    Ann
     ‍Art

  • Hi  

    Welcome to the forum .

    Did they mention the size of the lung nodule ?

    I know they watched my mum for two years before they felt it was growing at a rate they considered may be cancer as the lungs are notorious for small benign nodules .

    They watched my mum’s from 2 mm and removed at 8 mm . 
    We were pretty gutted for her however it was much easier than the bowel/ liver as she was able to get keyhole surgery . She was home within two days and recovered within two weeks .

    Others have used radio frequency ablation .

    Size and location matter but hopefully it will not be  needed .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Thanks Court, nice to get different feedback.

    Problem is they have told me nothing at all.

    Which lung, where it is or what size.

    I have had keyhole for my liver resection but only so much I can get my head around

  • Hi  

    A lung met can be particularly slow growing for some people . Given they are not particularly concerned clinically is actually good . However you are the patient and it’s frightening.

    We were frightened for mum and if I could turn back time I would have tried to listen and take. On board a bit more what they said . My mum’s oncologist who I trust implicitly, said to go away and forget about it and enjoy Christmas and not to expect anything until January. That was NOv . That’s exactly what happened and by the end of November it was out .

    Is it worth and and you clearly feel overwhelmed. My mum had seven years treatment free after her lung tumour . She is on year 14 since diagnosis as a stage 4 patient and treated like a chronic condition . She is currently back on treatment by only using a biological agent . She has a good quality of life but the first two years were the most intense with treatment and in our understanding of what what’s going on .

    Once we understood it was a chronic condition that might require more intervention when required I think we adjusted our approach and expectation . However she is determined to live her life to the full and cancer has to fit in around that . That approach takes time and not easy to think of when you are in the thick of treatment. Macmillan has teamed up with Bupa to offer six free counselling sessions . The helpline can give you more info if you are interested 0808 808 0000.

    I personally believe more support is needed help people draw strength when they are dealing with treatment for a prolonged period of time .

    Since diagnosis my mum has been all over Europe and helped raise her grandchildren . Wonderful family celebrations and holidays and she is still doing that into her eighties.

    I do hope this helps encourage you as the bumps on this path are rough at times and we understand.

    Also phone your specialists nurse and ask the information you wish to know . They are there for moments like this .

    take care ,

    Court 

    Helpline Number 0808 808 0000