Cancelled op colon cancer

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Hi, I'm feeling very stressed at the mo and would appreciate some advice. I was diagnosed with colon cancer back in June. Had my MDT on 3rd July, op was booked for July 18th, that was cancelled on July 11th my preop date, this was because I was due to have robotic surgery then they said I wasn't suitable for this, bearing in mind there was a strike just before my op date. I then had a new one booked for August 15th, it was cancelled on the day, after I'd been there for 7 hours (I was the last one on the list) The reason was that the previous surgery over ran to 6 hours and they said it would be too late to operate on me as it would finish at 10ish. You can imagine, I was pretty upset. I've now been rebooked for September 22nd! I've been ringing them and apparently I'm a priority to find a sooner date. Nothing seems to be happening though and now there is a strike. I'm also on a low residue diet as my tumour is partially blocking my colon which I've been on since June, I've had no proper advice on how to do this really. Also been on iron all of this time too. I'm really worried that it could be growing or spreading as they said it hadn't when I had my CT scan.  I feel like everything is out of my control, I'm going to be ringing again today.️  I've been advised my a Macmillan nurse to contact PALS if I don't get anywhere with this.

  • Hi Artcat. Sending you a big hug because this is so disappointing for you. I think the length of an operation is often hard to predict and I remember when I went for my hip replacement, the lady in the bed opposite was sent home because the operation before had taken longer than expected. My friends bowel cancer surgery took a lot longer than expected and the surgeon told her that they ate haribos to keep themselves going. 

    With regard to the cancer spreading I can understand the fear but hope this might help? With rectal cancer the patient has 5 weeks chemoradiotherapy beforehand then 6-10 weeks wait while it continues working before surgery. I was diagnosed on 22/6/16 and had surgery on 28/11 which was actually 2 weeks earlier than originally planned. I know your tumour isn’t rectal but it’s just to give you an idea of how the timings can vary but still be within safe limits?

    Continue to chase and hopefully you’ll get some good news soon

    Take care

    Karen x

    ps I’ve attached a link to a post about low residue diets below 

    community.macmillan.org.uk/.../low-residue-diet

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
    • Hi Karen, thank you so much for your reply and hug X sending one to you too. That has made me feel better, it's just the not knowing and lack of communication from the hospital that really threw me.They did tell me they'd caught it early and it hadn't spread so I've got to keep thinking that. You know what it's like, your mind goes to places it shouldn't. I will keep ringing them and hope something happens soon. Reading about what happened to you has helped a lot and I'm glad you got through it. Also about your friend and the haribos. Thank you so much for the link to the diet info, that's great. I almost didn't post thisSunglasses so I'm glad I did, you have made me feel a lot better.
    • Linda x
  • I don't know why there's an emoji there but I can't delete it. It kind of works anyway!

  • Hi Artcat

    So sorry that you’re going through this the stress must be awful, I was bad enough and I didn’t get cancelled 

    Others were cancelled around me when I went in for my reversal I was blowing a head gasket waiting from six thirty in the morning until four thirty late afternoon I nearly did a runner several times  but hey that was minor I’d had the big one sorted 

    I hope that you have some joy soon with getting that date fixed. 

    Keep on to them 

    Fingers crossed and sending you a good luck hug 

    Ann
     ‍Art

  • Hi Ann

    Thank you for your reply, it is the waiting that really causes the stress isn't it. I totally understand why you wanted to do a runner, I felt like that too. I'm glad you got yours done, I'm feeling like mine isn't ever going to happen at the mo so that made me feel better. 

    Thank you, I will keep going with the ringing and thanks for the hug, sending one back Blush

    Linda