Hi just looking for some advice please

Hi, Locket1987 , I too had no pain with the cancer,  but it will depend on where the cancer was, whether he has had an operation to remove the intruder, and what the chemo is. Then someone can perhaps jump in if theirs is similar. Hope that makes sense! All the best to you both

Thank you for your reply. No operation yet. It’s rectal cancer and right at the opening (sorry didn’t know how she’s to say that) we was told it’s ‘localised curable and non aggressive’ at diagnosis.  the chemo is once every three weeks through the drip and the 2 weeks of tablet form ( I don’t know the name as it’s in my dads bedroom and he’s asleep) he is due 4 rounds then radio with chemo then possibly an operation but they said he may not need it. 

Just seems odd that he’s having such bad pains now and diarreah and the anti diarrreah tablets don’t seem to stop it. 

I feel awful worrying as I know some people have it so much worse but I’m just so anxious my dad is my best friend and I’m so scared. 

sorry if I’m not using the correct words or language this is all new x 

Ok, so you are at the start of the journey, but take heart that they said  ‘localised curable and non aggressive’ at diagnosis. I had rectal but went straight to surgery, so can't comment on the regime your dad is following. Perhaps Kareno62 can help? Sending ((hugs)) to you both

Thank you so much. It’s so nice you replied xx 

I hope you are ok in your journey x

Hi Locket1987 

My mum’s second was one of her worst cycles but three and four were actually better .

She did get a lot of colic type pains with the oral chemo tablets but please do encourage him to contact his team as they will look at the dose of everything including his anti diarrhoea  meds . Small adjustments can significantly relief symptoms and make it much more manageable.

My mum took over the counter buscopan for the stomach pains and that helped a lot along with a hot water bottle .

I looked into her room one night and she was rolling around her bed in pain . 
Please do contact his specialist nurse and let them help make this a bit easier for him.

Take care ,

Court 

Hi Court,

Well cycle 4 and after the oxilaplatin the dreaded throat spasm. Lost a stone in 2 weeks. I think I’m looking good the consultant had other ideas lol. He informed me in 6 weeks I’ve lost 3 stone. I said but the first time I met you i had 3 chins I said I look good no. He said you always look good lol.

I’ve had a rough two weeks then that today hey ho. 

Thank you so much Court.  He’s been using buscopan but not quite helping, haven’t tried the hot water bottle that’s a great shout! . We have informed his nurse and oncologist they’ve said they may adjust at the next clinic which is Tuesday. So fingers crossed. Xx

Oh Faloola . That’s the exact amount of weight my mum lost . I think they get concerned if it drops too much . Mum still talks about the throat spasm . It’s such a horrible side effect .

How are you tonight ? Mum got a scan appointment through . It’s that time again .

You do sound a bit rough . Are you scanning soon ?

Court 

Hope they can help him Locket1987 . It’s hard to watch them go through this but sounds as though his team are going to get onto it .

The hot water bottle was a big help .

Take care and send him our very best .

Court 

Oh really, Your mums a wee trooper. I’m better tonight the leg tingles have started. Throat better hot cups of tea and hot neck packs. Yes unfortunately I’ve been poorly the last two weeks. Oh has she the dreaded scans. He ordered mine up today for the midway of the 6 months. ️