Hi
I hope everyone is having an OK day. I was wondering if anyone has experience of going through chemo with fibromyalgia? I was diagnosed about 6 weeks ago. I first had a stoma operation so I will tolerate the radiotherapy better. The fibro symptoms have been much better than I expected. However the pain and dizziness I experience with fibro has started coming back over the last couple of weeks and next week I start chemo. I am worried how the fibro will respond to the treatment. The doctors have said to just see what happens, some people respond really well to chemo whilst others it worsens the symptoms. I'm keen to know how others have managed so I have some idea of what might happen.
Thanks for reading my post
Hello Nicky knits
I hope you do not mind me replying as I do not have fibromyalgia but I saw that your post had not been answered yet so I thought I would respond to move it back to the top. Hopefully someone in a similar position will see it and offer support.
I had chemotherapy last year and I think that from my experience you just don't know exactly how it will affect you until you actually have it. I think what your doctor has said is correct, they just don't know how it will effect your symptoms. Some might get worse, while other people will respond well. What I can say from my own experience is that you are so monitored and well looked after throughout chemo that any problems can be picked up and there is often something they can do to support you with any side effects or other conditions. When you have chemotherapy they normally give you a diary where you note down everything and I found it helpful to fill it out each cycle and then was able to talk it through with my nurses and consultant.
I think the main thing is to go with the flow and see how it affects you and talk to your CNS about any symptoms as they occur.
Hope this helps a bit. Good luck with the chemo and the radiotherapy and I hope it all goes to plan for you.
Jane
