Hello from Hugh

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Hello I have recently been diagnosed with Bowel cancer and have just learned I also have a secondary tumor in my lung First meeting with surgeon/ consultant tomorrow 26/4 had a ct scan two weeks ago and pet scan yesterday 24/04 .  It would be really helpful to know what to ask consultant and any tips or experiences in common with my own ta H 

  • Hi  

    Welcome to the forum !

    Sorry to read you are dealing with a spread . Not sure if you have all the details yet but you might like to ask about the best way to contain the spread .

    My mum had a slow growing lung nodule back in 2016 which they removed surgically and she was only in two days . It was the most straightforward of all she has gone through as she was able to have it with keyhole surgery. That’s one angle you might like to ask about . You also might like to ask about Radio frequency ablation .  has successfully used this for two lung mets and could give you more information if you want it .

    You may also like to ask about chemotherapy if they felt that was appropriate. My mum is now in her 80 s and dealing with a spread using a targeted treatment which has been manageable .

    As you can see there are various options that might or might not be appropriate but worth asking . I personally asked about the size and location of the tumour and when it was first noticed on the scan as it gave us a feel for how quick or slow growing it was . My mum’s actually took two years to get from 2mm to 8 mm . 

    I wish you all the best and hope you have some good information from your team to go forward with .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Thanks so much Court , that is very useful to take to my appointment and thanks for the link to further information 

  • Hi Hugh (& thanks for @court for tagging me in here.)

    I expect that they will be dealing with your Bowel Cancer foremost. The size & position of your Lung Met will no doubt be take into consideration also. I would ask - What is the size & position of that Lung Met? Will I be expecting an Op to remove the bowel cancer first? or perhaps Chemo first (with the hope of shrinkage?) The PET scan would have determined the size & position of the Lung Met.

    The team will know exactly what to do - so all the best for tomorrow.

    Marianne

  • Thanks Marianne that is very helpful and I will find out more tomorrow re the lung but think it is on upper right lobe not sure of size until tomorrow thanks so much Hugh 

  • All the best for today  and don’t be put off if they want to do chemotherapy first . This is very common and for good reason . It not only deals with the visible disease but and stray cells . My mum had chemo first and it was a good plan . Her bowel tumour also shrank and gave the surgeons good margins to work with . Her initial spread was to her liver . 
    They will tailor your treatment plan to your needs and we are here to support you as you work through this . 
    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Hugh pew - I hope today's appointment went ok