New to bowel cancer

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Hi, my mum at age 81 was diagnosed with bowel cancer T4 in Nov 22. She is unable to have surgery due to age and heart condition and they have not offered her chemotherapy as this would shorten her life. The tumor was found after camera procedure which should have been done as an urgent procedure in may 22 but was never done and we were not told that is was needed urgently. She had the procedure done in Nov 22 and this is when the tumor was found. Since oncology referral was done we have had no contact by anyone and just left to get in with it. She is now I  hospital for the 5th time since May 22 with delirium. She has lost 4 stone I  weight since May 22 and now has to walk with a frame. Had a phone call today from hospital as they are trying to discharge her as she is medically fir but not mentally fit. We have good days and bad and very bad days. She has suicidal comments but they are still trying to discharge her. I have my dad who is 84 at home and she was his main carer. Infact they they try to look after each other but it's getting harder. I need help as it's starting g to affect my mental health but don't now where to turn. 

  • I’m so sorry to hear about your mum. I’m hoping Court may be along shortly with some advice but I’m thinking that your mums doctor may be the best person to speak to so some help can be put in place for both your parents going forward. In the mean time please give the support desk a ring on the number below and have a chat with them?

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hello  

    Welcome to the forum . I was in a similar situation to you last summer trying to take care of both parents with competing needs . Sadly dad passed away but it did come to a point where I had to ask for assistance . If your mum is still in hospital I would ask for an urgent social work assessment to be done prior to discharge . This would allow her full care needs to be assessed and you might also like to get onto your GP and see how to get your dads needs assessed . I would say to do this sooner rather than later as it takes a long time to get a plan put together . Getting a little help to get them ready in the morning or evening really helps the other elderly carer . This can also cover meal preparation etc so might be worthwhile looking at all aspects you currently provide .

    Knowing others are helping with the care really reduces the burden on one person . It can start a small package of care and build up as the needs present themselves . It’s much easier to do this having a foot in the system than it becoming an emergency when the system breaks down .

    We all need a bit of help and I personally found it very hard bringing in external help but I need not have worried as they were wonderful . I obviously put in some safeguards around bank cards etc .

    The carers brought in new conversations and lifted their spirits . It really was a blessing .

    Our helpline staff would also be happy to chat .0808 808 0000

    take care ,

    Court 

    Helpline Number 0808 808 0000