Hi there

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Just wanted to say hi. 

My diagnosis was an out of the blue one this past week, only really symptom was abdominal pain but that had been attributed to potential endometriosis and then adhesions, this wasn't on anybody's radar (understandable I suppose, I'm only 38 and the others explained the pain). They weren't looking for it when they found it in a CT scan after hysterectomy. 

It's already metastatic but we're still early days, I still don't know quite what chemo will look like or which type we're going for but I know that talking to others going through this is going to help give me the strength to fight this!

  • Hello  ,

    I am so sorry to hear about your diagnosis. Quite a lot to get your head around when the news comes out of the blue like that.
    I am sure you will find lots of help & support in this group. There is generally someone that comes along who shares a similar experience that can give you hope & optimism.
    This group’s members & the Macmillan factual resources really helped me when I was diagnosed. Stopped my head from doing its own thing…

    Hugs,

    Bee

  • Hi, sorry to hear this. I too have had a “probable’ diagnosis this week. I’m numb. Got a Ct scan booked for next week but it’s the waiting. Was told just an hour after a colonoscopy last Sunday. Had no symptoms other than breathless walking up hill where I usually managed ok so went to the go. I too hope talking with others will help as I feel so helpless. I’m 54.

  • Dear Carebear and Atticus

    Firstly, massive respect to both usernames - you both take me back to lovely memories with them.

    Welcome to the forum and sorry for what your both going through. The weeks ahead may have lots of terminology thrown at you and quantity of info can be overwhelming.

    My best tip, to read at your own pace and only when you're ready, is this document from Bowel Cancer UK abput pathways:

    https://bowelcancerorguk.s3.amazonaws.com/Publications/YourPathway_BowelCancerUK.pdf

    My second best tip, use this forum to help you through your journey as amongst us we have experience that may help boost you. Revolving hearts

  • Welcome from me too   I came here back in 2009 /10 when my mum first started out on her pathway for a metastatic spread . Still here as she is too and I hope it gives you a bit of encouragement.

    Keep connected to here and your own life Where possible . There are many people going through this too for you to connect with .

    take care ,

    Court 

    Helpline Number 0808 808 0000

  • Thank you, just having a space to share this journey with people who truly understand has already taken a weight off my shoulders somewhat. 

  • Attics,

    I'm so sorry for you too. You're so right this limbo space is just the worst. 

    The CT thankfully is at least non-intrusive and not painful in anyway, if they use contrast it really does feel like you're weeing yourself but trust me you're not!

    I feel that having a safe space to share and talk openly is so important in processing everything and finding the strength to move forward.

    Sending love. 

  • *Atticus.......my phones autocorrect is annoying, apologies!

  • Welcome   lots of support for you here and hopefully lots of encouragement to help you through the process until this is firmly in the rear view mirror .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Care bear I totally agree with you Just not being alone helps. Much love sent.x

  • Thank you, I felt very alone until I found this group. I’m very grateful for finding people that can share my thoughts without judgement. Much love to you.xx