Newbie

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Hi, Newbie to the group (probably baby of the group too). 
35 and got diagnosed with stage 2 bowel cancer 3 days before Christmas Weary

  • Hello Indomitus

    You most definitely are the baby of the group.
    Welcome I’m sorry that you find yourself here but it’s a safe space to chat to others that have been through treatments. 
    Have you had your treatment plan explained?

    sending you a big hug 

    Ann
     ‍Art

  • Hi   so sorry to hear your diagnosis and at such a young age too. Has any family had history of this before? It might be worth mentioning Lynch syndrome testing to your consultant to see if it’s genetic. I found out I have this and will have closer monitoring and testing in the future.

    as scary as this all is, there’s every chance your treatment won’t be as bad as you might think. I had stage 2 bowel cancer of the colon and had part of my bowel removed in September. No chemo needed and am now being monitored. Hoping for something similar for you. Good luck xx 

  • Thank you for the welcome. I’m yet to find out my treatment plan. So very much still in the dark with what to expect and when to expect. 

  • Thanks for the reply :) My parents are my adoptive ones, I have contact with my birth mum but I haven’t told her about my diagnosis. Infact only my bf and my best friends know about it. I never thought about asking her if it runs in the family - which I might do now. Still doesn’t feel real, and when I talk about it it doesn’t seem like I’m talking about myself. 

  • Hi and a warm welcome to the board from me too. You’ve had some great replies but I just wanted to add a link to a booklet that I was given at my first meeting - it’s quite good for giving a heads up about the different treatments, terminology etc.

    bowelcancerorguk.s3.amazonaws.com/.../YourPathway_BowelCancerUK.pdf

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Perhaps you can just ask her if there’s any history of cancer as people at work were talking and you realise you don’t know the answer? That way you don’t have to tell her until you know more or are ready. Google lynch syndrome, bowel cancer is the most common but there are others too. I’m glad I know now! 
    im 6 months down the line and still can’t believe it, not sure if it will ever completely sink in! 

  • Hi Indomitus

    I hope that you’re okay. I remember how frightening it is those early days. I went on Google and frightened myself silly with self diagnosis  I wish I joined here earlier 

    With most of us we had the relevant tests that were needed. The results then were discussed and our treatment plan’s decided then we were called in to the relevant specialist. In my case I was straight to surgery as I had rectal cancer and was close to blocking. I was stage 2 and I didn’t have chemo. Some have chemo radiotherapy it all depends on the best treatment for you 

    If you click on names you can read members back story. Or you can use the magnifying glass to search however I think the best thing to do is be kind to yourself one day at a time and let the experts sort out the cancer. Treat yourself 

    Ann
     ‍Art

  • Thank you :) sometimes I think reading up on things is good other times I’m not even sure I want to know Joy else it sets me off worrying when I’ve got too much quiet time to myself. 

  • I got my results the same day I had my colonoscopy, I was sat in the recovery area and I remember asking for a cup of tea and biscuit and I didn’t even get it because I was soon whipped upstairs to have an MRI and a CT scan with dye. They knew during my colonoscopy there was something and sent me off to see if it had spread. 

    I got discussed by the MDT team in Lincoln and it’s been decided that because I have a very complicated background with Cystic Fibrosis, Bronchiectasis, Asthma and a thyroid issue aswell as kidney issues that I need to be referred to Nottingham. So now I’m waiting to hear from them.

    That is the most stressful thing … waiting Weary

  • My Goodness and you didn’t even get a cup of tea. That must have been frightening going a fast speed 

    It sounds as if they’re on the your case and you’re having great care

    Take care of yourself 

    sending you a hug x

    Ann
     ‍Art