G I S T

Hi Trucky G I S T 

Welcome to the forum . Has your tumour been fully removed in surgery ?

I would avoid Google . Speaking to the specialist in the field allows them to give you the correct information on the grade and type of cell specific to you . Interpreting the information on Google can be very difficult especially if it is older research or not fully comparable with your own situation . 

My mum’s outlook was pretty bleak but she is still her 13 1/2 years later and the treatment worked a treat . Whilst I knew her prognosis she declined to hear it . She wanted to focus on her treatment and wellbeing . I guess it’s up to you in the end but I think you have to ask how much you really want to know and will it actually help you going forward .

Take care ,

Court 

Yes tumour fully gone have a nice scar sternum to fur down past my navel i guess what worries me most is the perferated part of surgery being honest on my thoughts most.the wound on my chest is just about fully closed now and wouldn't want to have my bum reattached it been v pain full recovering the stoma part was ok but have multipull hernias thats not full or a laugh  thanks much trucky..

#fun

Ah yes , did the hernias pop up after surgery . My mum got two large ones but they have actually gone down a bit .

Thats very encouraging that the tumour is fully removed . A great starting point . I had a quick read and see GiST uses more targeted therapeutic agents than chemo . Not sure if that’s the case but my mum is just about to commence on some so will let you know how it goes .

Maybe once you know the best approach to tackle any potential stray cells you will feel a bit more confident in the process .

Take care ,

Court 

Hernias all post op... the colorectal team have been great and made the transition to bag life easy and are getting me a belt to hold everything in place hopefully it will make life a bit more comfortable...thankyou Court.

Jay still has his hernia. Was offered surgery to push it back in but declined. The stoma nurse offerred him a support belt as well but didn't want that either. At the time he said he had been poked and prodded enough. 

I does feel like that... but the chance of easing the        discomfort is a shot till they decide where i am on my journey and then when and how to repair all the muscle thats been weakened..i will let you know if it worth it gets here just before i go to the christie.

Hello PattyK i hope you and Jay are ok in answer to support belt or not i would say its a great comfort and eases movement and even sitting i am already feeling much less pain and discomfort.works for me anyway.stay well and all the best to Jay....Rob