Going crazy with worry...

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I am so pleased I have come across this forum, you have unknowingly kept me sane over the last few days whilst reading through your many personal stories and offers of support to each other - so a huge thank you for that. I know it is impossible for anyone to give me any answers but I am going crazy with worry here and need to project my anxiety somewhere so my apologies for offloading! I went for a CT colonoscopy last Friday as a routine check to investigate what was presumed to be diverticulitis. I had no real concerns but Saturday morning the hospital called with an appointment for me to attend for a liver/spleen MRI on Tuesday. I couldn't understand why there would be any need for further investigation in that area but obviously after googling it became apparent the connection between the liver and the bowels. I am trying to stay rational and keep telling myself I can only deal with the facts once I hear back but as I am sure you will understand my mind has gone to places that I don't really want it to go to! I am a single parent to my 15 year old son and with no extended family I feel paralysed with fear thinking of the impact bad news could have on his life. I lost my mum to melanoma in my early 30s, she was only 50, so I know how traumatic grief can be - but yes I know I am catastrophising, lol!! I know all I can do now is wait to hear back from the hospital but in the meantime thank you for letting me vent. X

  • Hi  

    Welcome to the forum . We all understand here what you are going through as the unknowns are often very difficult to process .

    However this is actually a lot more common than people may think . The liver can have benign cysts and they just check that is all they are . Often a rule out than ruling in . My friend has just gone through this too . 
    However even if it was a malignant tumour bowel cancer is a bit more fortunate in that area and still lots of treatment available. My mum

    had surgery back in 2010 on her liver with no further issues .

    Hope you hear soon and can put this anxiety behind you .

    Court 

    Helpline Number 0808 808 0000

  • Thank you for your reassurance Court and I am so pleased to hear your mum is doing well. You are right, it is the unknown that is the worry, I think especially as my only concern was diverticulitis the possibility of it being something worse has all come as a complete shock. Hopefully they will be in touch soon enough so I can have the facts, although I am desperate to hear I am secretly thinking the longer they take to contact me the better the news will be. 

  • Hello Babaganoush, 

    I had my colonoscopy in October 2022 and wasn't expecting cancer but it was, rectal cancer.....I was lucky enough to be able to just say ' it's there and has to be dealt with ' So I decided to meet it head on and accept what the experts thought was best. 

    Yesterday I finished 25 x Chemoradition treatments over 5 weeks and I feel a little unwell but nothing I can't cope with. I wait 6 weeks now for treatment to work and then possible surgery.

    I know everyone's case is different as is their anxiety and fears. This is my personal situation.

    I hope you cope well on this journey you are about to embark.....(even better it turns out to be a diverticulitis flare up)

    Take care, Ralph.

  • I can understand what you must be going through right now, but as said, benign cysts may indeed be a possibility - in which case, they will not be problematic for you.

    Did the person performing your Colonoscopy not speak to you following it? I have had two Colonscopies, & in both cases, the results were explained to me in person immediately after them - & I appreciated that. To have to wait till next Tuesday must be awful. I would have hated that delay.

    Best wishes

    Marianne

  • Hi Ralph

    Thank you for sharing your personal story - it sounds like it has been a rough ride but I love your attitude. I agree that a practical approach is probably the best way, within the limits of being a human of course, as I am sure you have had your off days too. Wishing you all the very best on your road to a full recovery, sending love. 

  • Hi Marianne 

    Thanks for your reply. No nothing was said after the colonoscopy which is why I was completely taken aback when they called the next morning asking me to come for an MRI. I have had the MRI (this Tuesday) but the radiologist said the consultant will be in touch and that she couldn't give me any information. I have just had to join the dots - hopefully they will be in touch soon as the hypothesising is driving me nuts! Hope you are doing well X

  • I am surprised that nothing was said after your Colonoscopy - by the team that performed it. The Radioligist will never give information re. scans - they just send the information to the relevant consultants that you are under at the time. However, waiting for next Tuesday, is a long time of anxiety. I would probably phone the Dept. that rang you initially, for more information tomorrow. Too long to wait IMO.

    Marianne x

  • Hi Marianne

    It was the MRI that was on Tuesday, I actually have no idea when they will be contacting me. I have been given no information at all other than to attend the MRI appointment.  I don't have a contact / consultant as I presume I was called by the bookings team and my original referral was via the GP.  It is so stressful but I am also thinking I should embrace this time of not knowing - sometimes ignorance is bliss! I am trying to channel Hugo8's approach and whatever the outcome I just need to deal with it head on. I will dig deep, so many stories on this forum have inspired me. Sending thanks for your support X

  • I wasnt told anything after my colonoscopy.sent appointments for mri and ct scans.then a further appointment for the surgeon.by then I had pretty much guessed what was going on.It was only when I saw the surgeon that all was explained

    So obviously different areas do things differently.

    Kath

  • Thanks Kath, yes I think it is just unfortunate that I entered the system via the diverticulitis symptoms so cancer wasn't even on the radar - well not for me anyway. Sorry to hear about your experience, hope you are doing ok. X