Hello

Welcome Andie 

So glad you joined in the chat . It’s so important to reach out to other in a similar situation and breaks the sense of isolation that continuous treatment can bring .

If you click on my user name you can read my mum’s story as she has navigated a stage 4 diagnosis since 2009 . Up it has popped again and so some form of systemic treatment will be the way forward if tolerable .

It sounds as though your wife is tolerating treatment . You will see people on the boards and they have been doing chemo for years and years and living a good life .

Someone once said it’s a marathon not a sprint in a stage 4 diagnosis and getting the balances right keeps things in much better shape .

My own mum is trying to increase her strength just now and us having some success with that .

Is the treatment keeping things stable for your wife ?

Take care ,

Court 

Thanks! Yes she is tolerating the treatment pretty well. I think it has only recently become clear how much this has changed our life together. Christmas was dominated by chemo, a magnesium hypo, a nasty fall and severe loss of appetite! Suddenly made me realise I needed to be able to share with others going through similar things!

Hi Andie and a warm welcome to the board from me too. It’s good to hear that your wife is tolerating the chemo well. As Court says there are people living with cancer for my years with chemo treatment - there’s a couple of ladies on the bowel cancer uk board with liver mets who have been having treatment which has stabilised their condition for several years and have had 130+ sessions each. They lead normal active lives including wild water swimming!

Glad you’ve joined us - it really helps to talk with people who’ve been or are in the same boat and ‘get it’.

Take care

Karen x

Hi Andie

It really sounds like you’ve had a rollercoaster ride. I myself was diagnosed August 21 and have had amazing support and advice here

Like Court says please read her story and how her Mum has been through her diagnosis/treatment and I’m sure that Courts support has really helped her, and still is  

I have found positivity keep me going.
Yes I get “feel sorry for me day, and poor us as my Husband has Parkinson’s diagnosed six weeks after my operation 

But we are still plodding on. He’s a PD warrior ( that is a real thing) and I’m a Cancer Warrior ( that’s not a real thing)

Hope you have a good day