Hi
I was diagnosed with with stage 4 last August and started
Chemo in the October. It had already spead to my liver
We threw everything at it but it was clear it had other ideas
It spread into my stomach and is now in my lungs I came to the decision to end the treatment so am now at end of life home care. So why do I feel so guilty for stopping. Is this a normal reaction. I worry that maybe my family will think I should have carried on. I'm very confused about my feelings.
Does anyone else in the same position feel the same way?????
Hi Matrix
Just wondering if a chat with our helpline staff might help settle your thoughts . It is certainly something they will encounter a lot and they will be happy to chat it through with you .0808 808 0000
I can only speak as a daughter , completely mum’s decision . I could see the benefits of treatment when it is achieving something positive in terms of disease control but when that ceases to happen then clinically I think it’s exhausted it’s benefits and the risk /benefits analysis shifts .I would be totally supportive and understand her decision if not a bit sad for her that she had to make that decision in the first place . I certainly would not think she should endure more treatment that is not doing it’s job . Could you have a chat with your family ?
As a daughter it would then shift to making the next approach work at its optimum.
Macmillan has teamed up with Bupa to offer six free counselling sessions . I am sure online access might be possible if you feel this might help resolve this emotional aspects around this decision then please do call .
You did your very best in the circumstances you found yourself and endure every treatment possible for you and your family . That’s a lot to go through and it’s also just as important to know when it’s wise to stop .
I wish you the very best .
Court
Helpline Number 0808 808 0000
Hi, I was diagnosed with stage 4 at the beginning, he'd chemo, large op, then more chemo, only to find my cancer liked me and didn't want to go away!. I was offered a type of chemo then to try and keep it at bay, but that didn't work either.
At that time I wasn't feeling too bad. I was offered trials, which I refused as I wanted to enjoy what life I was left.
I also had periods of feeling guilty, but I was lucky that my closest family understood what I had already been through. I have never regretted my decision, from April till now we have enjoyed life to the full. One member of my family was absolutely horrible telling me I should never give up, but I didn't see it that way. Treatment can be way worse that the symptoms and unless you've been there you can never understand
At the end of the day it is your body and your decision to make, and I'm sure they understand. I am now at end of life care too.
I hope this helps a little. Sending love
Hi Matrix
Life is not the be all and end all if there isn't the quality of life that you want for yourself and your family.
You've given it your best shot, you've won some of the battles but not every war can be won.
Its a brave decision to take and I know that if it came to it, my own family would all support my decision (we've already discussed it even though at the moment I'm living life well and my cancer has not returned).
It's your body, your life, and you won't have taken the decision lightly. Some of the treatment is horrendous and can be worse than the symptoms and ive watched people struggle on through pain and indignity.
I would make the same decision if I felt it was the best and would do so with no guilt, as I believe in the souls journey onto the next stage when it's time.
I wish you good luck in your journey
Richard
Thank you for that, I always tell people that I am living with cancer not dying from it and deep down I know I made the right decision. with the chemo I was in and out of hospital like a yoyo and thats not a life. I hope you are keeping well. God bless you
Matrix
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