So, tomorrow Jay goes in and gets his PICC line fitted. I'm feeling all sorts of emotions for him just now. Nervous, Hopeful and Emotional all rolled into one. He got a phone call yesterday from the Beatson cancer unit in Glasgow as I think I mentioned here and the nurse I take it was that he spoke to I think cos I wasn't here, managed to give him some reassurance as to how the procedure works. I had visions of these long wires hanging out your arm which do but are not long and strapped down so it just looks like a big bandage you have on your arm just with wires you can see through it. It will probably take a bit of getting used to but I think once it's there. it's there and you can just get on with everyday things as some of you here have mentioned that have already had one done. Just says online about them that you have to be careful if lifting anything heavy and playing certain sports like tennis, badminton, squash etc is a `no no`. I'm just keeping fingers,toes and everything else crossed for him.
Vicky x
Hi Vicky ( PattyK ) I am not from this group but had a PICC line in for several months for my own cancer. Not as bad as it sounds. Painless going in. Once in, they send you for a quick x ray to check it is in place. Most of the time it is covered with a dressing. You can get special covers but I bought a roll of elastic bandage (tubigrip) and cut a fresh piece off each day to keep it tidy. After a day or so you forget it's there. As you say, nothing too strenuous. Important not to get it wet. You can get waterproof covers for the shower or bath, but I am a cheapskate and wrapped my arm in clingfilm which worked for me . it needs to be flushed out once a week, but again no problem. I had an agreement with my GP practise nurse to do it rather than going to hospital. The best thing of a line is it takes away all the prodding with needles for bloods and treatments. Best wishes.
Thanks Riley!
Yes, read so many positive things about the PICC line and the ingenious ways people adopt to `disguise` it. Yes I suppose clingfilm would work for the shower but there's always a chance it could come off?? I'll see first if the hospital can supply him with one of the sleeves or maybe just order one online Amazon do them looked them up but then again you have to make sure you get the right size I suppose. I think there will be a nurse coming in each time to disconnect the chemo pump and flush it through or again maybe they'll arrange for Jay to go to the GP practice nurse for that too but then they tell you that you get shown how to flush the line through yourself. He has a stoma bag and changes all that himself so this maybe just be a wee added extra for him or I can do that.
Vicky
Hi again Vicky. I had a chemo pump for a week at a time for chemo. If similar to mine, the drugs are infused very slowly over a long period and so does not have the same effect as the one day big hits. Kept in a pouch on a belt. The awkward thing is working out how to get your clothes on as you can't take it off. I tried different ways in bed but ended up keeping the belt and pouch on in bed and all was fine. I hope all goes well.
We'll work that out someway no doubt. I think the chemo pump administers it over 48 or 72 hours is that right?? then the nurse will come in and detach the pump and the line stays and completes a cycle until the next one starts. I think he is getting his fortnightly.
Vicky
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