So, Jay is still a little bit better today not much but ok. He hasn't been out at all today just preferring to sit in the chair and watch TV which is fine. It is Sunday after all. He had a cup of soup for lunch today with a slice of bread which he hasn't had for a long time. He's gone for a nap again, but I am putting this down to his sleep patterns being very erratic at the minute. He will go to bed about 10 or 11 o'clock but he can be sitting up again about 2 in the morning last night he said he was really warm and today he said he was really warm. Took his temperature again and it's normal but every other day he has been cold. I did see a glimmer of the `old Jay` earlier today as well. Have one of those turbo brush things to clean the bathroom and the battery ran down and I was charging it. I went to lift it and carry-on cleaning with it, and he pulled one of his daft faces and said, `you away to enjoy yourself` things like that I've not heard from him in weeks, so I know he's still in there. His voice is starting to come back a bit too a couple of weeks ago his voice was really low and Jay is one of these people you hear him before you see him with his big booming voice. It's still a little bit croaky and raspy and he sounds a bit `nasaly` as if he has a cold but I can actually hear what he is saying now. Seems chemo has an effect on the voice too so don't know if he will lose again if they put him back on chemo. Absolutely dreading Thursday now with what they're going to say. Wasn't prepared for that `bombshell` the last time when they said he's had a spread and now I'm worrying the longer he's off chemo the further it's going to spread. Take Care.
Vicky x
Glad to hear there's some light I had a slightly squeaky voice through chemo too but passed soon after last dose.
Keep going
Thanks Ed!
He actually made dinner tonight so it's little things like that that show progress. It was a little bit over cooked- by his own admission but it was edible. It was just so good to see him back to doing something he thrives on- cooking! He'll do his best James Martin or Gordon Ramsey and I'll be like that'll do it and just slap it on the plate and Jay be there having it all lovely presented on the plate. Long may it continue.
Little steps in the right direction, so pleased for you the first meal i cooked for myself after surgery was roasted salmon. Supposed to be done for 20 mins, but I forgot it and was 45! It ended up being a little caramelised!!!! Very tasty though
Yes `caramelised` that's the word I was looking for Ed but as I say it was edible. Just trying to get him moving a little bit at a time. As it is, he is just sitting here `stagnating` watching mindless TV all day. I's bracing myself to get him outside for a walk but don't actually know how to approach that without fireworks going off! I've asked him if he could clean up the kitchen today he actually went in and cleaned out his `caramelised dish` he used to do his casserole in so this spurred me on to ask him to clean up the kitchen. We'll see what happens.
Vicky x
I always have found that the best way to encourage, is to complement. Tell him how lovely the food was - maybe stretching the truth - but it may inspire him to want to cook again??
Good luck with tapping into his latent enthusiasm but I know you'll do it and will get the happy times back. Its a journey worth taking and if the suns out, even if its cikd, the healing powers of it will help. Mother nature is an amazing woman!!!!
Ive just been for a walk along the beach near my caravan and feel so invigorated, so will treat myself to a full englush brunch
It hasn't worked Eddie! He's just not for it he's just decided `he cannot walk`! so he's more or less just given in. And I just do not know what to do. I'm guessing no amount of coaxing or reverse psychology is going to work. He has to do want to do it on his own. I could show him posts on here but he wouldn't even look at them or it would be an `aye so what`??
He cleaned up the kitchen this morning. I asked him if he could do it and he said he would try. So he went into the kitchen and came back out a little while later and he had cleaned up everything- in a bit of a fashion mind and not how he would usually do it but it was done so it prooves that he can still do something instead of sitting wallowing in self pity.
Vicky x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007