Just diagnosed and petrified with fear

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I have just been diagnosed with bowel cancer. I had the colonoscopy and endoscopy yesterday and the CT scan today, I dont know yet what grade of cancer and what my treatment options are. I, and my wonderful husband, have been thrown into this with no warning. I have no traditional symptoms and the postal test was clear, I had become breathless on exertion and found to be anaemic and many other tests then followed. I feel like I am in a waking nightmare and feel completely out of control. 

  • Hi

    I completely understand how frightening a cancer diagnosis is, so write this to give you a very positive story!  I had Bowel cancer fifteen years ago and it was Stage 3, as I had ignored symptoms for too long!  surgery and chemo, it was successfully treated!  I have had no recurrence, although had stomach cancer four years ago, which was unrelated!   I now lead a normal life, eating and drinking pretty much as before!  

    Bowel cancer is treatable especially if it’s found early.    There are so many people on this group with positive outcomes. Once you have a treatment plan, it becomes easier.   

    Good luck!

    Jac

    Life is what happens when you are making other plans!  
     
     
  • Thank you so much for your encouraging message. 

  • Hi,

    Im so sorry you find yourself on this journey. Just take one day at a time. 

    Sending you big hugs. 

    Cath

  • Hi. I feel your pain and worry, I too was diagnosed yesterday with bowel cancer and like you I am in a terrible state of panic and worry. I am due to go in this Saturday for staging but due to the cancer it may be that they keep me in for surgery although this isn’t known until I get there. I hope so much your prognosis has a positive outcome and please keep in touch with any updates you have. I was almost relieved to read your post with a diagnosis on the same day. I pray for us both xx

  • Hi, thank you so much for replying when you are also going through the same as me. I haven't been graded yet either so this waiting time is the worst. Shaking and feeling sick and unable to sleep. I will be thinking of you, let me know how things go and I will also update you on my journey. xx

  • Thank you for your kind message. One day at a time is the only way forward, but so difficult. 

  • Hi  and  and a warm welcome to the board to you both. These first few days/weeks tend to be a whirlwind of tests, scans and meetings but once you have a treatment plan in place then things will honestly feel a bit better. As Jac says bowel cancer is quite slow growing but very treatable - I was also stage 3 and will celebrate 6 years clear at the end of this month.

    Please stay away from google - it is out of date and can be downright scary in places. You can click on peoples names to read their profile page or just read previous posts. We are all at different stages of treatment and recovery and will be happy to help and support you through yours.

    Ive attached a link to a booklet that I was given at my first meeting which talks about staging and treatment etc. 

    https://bowelcancerorguk.s3.amazonaws.com/Publications/YourPathway_BowelCancerUK.pdf

    Please keep us updated?

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • FormerMember
    FormerMember in reply to Tillymack

    I was diagnosed with boel , lived and stomache cancer. 

    Like you absolutely TERRIFIED

    I live on my own and although I have a good supportive network this make it really hard.

    They tried chemo tablets at first but it has a little effect on the liver cancer the stomache has increased.

    I started chemo infusion yesterday Folfiri. 

    The fears and anxiety are still bad and it's hard to focus on something else. 

    This group is good so use it often.

    There's always someone to listen.

    All the love to you.

    Jenny x

  • Hi,

    I put everything in boxes if you know what I mean. I’m running out of space for all these boxes in my head lol. 

    Your right of course, it’s not easy. 

    Cath

  • Jenny, I am so sorry you are going through this, it must be so difficult living on your own. I send all my love to you and hope that the chemo works.