Ileostomy reversal bowel frequencies

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Hi all,

I am new here and just had a few questions. I had very low rectal cancer. My surgeon removed my entire rectum. He said he was just barely able to connect my colon to my anus. I was on an Ileostomy for about 3 months. I just had my Ileostomy reversal 11 days ago. I was constipated at first but hen through stool softeners, things started moving a little. Yesterday my surgeon dialated me (not fun) and since that time I have been going to the bathroom about every 15 to 30 minutes. Sometimes I just finish and I go again. I can’t stop it. My bum is so sore that I have started going into the shower to clean off. I am using Desiten and flushable wet wipes. My question is have others gone through this kind of frequencies and what have others done for the sore bum? Also, if this frequency is going to last for weeks or months, how have others worked?

thanks,

jdr7665

Wellspring over 2 years ago

Hi jdr 7665

You might find some useful material on the LARS section of the stoma group. I still have a couple of cm of rectum remaining, so not quite the same as you. But I hope the ideas and sources you’ll find in the LARS section will be helpful. Improvement is always possible. Nearly 2 years on from reversal, I’m still making progress, even if I still hit the odd pothole.

For the sore bum, anusol in a tube or as a suppository has eased the discomfort.

Every blessing

Wellspring

Artsie over 2 years ago

Hi I was reversed Sep 2nd and those early days were painful especially the sore bum. I tried creams but the best tip I’d like to pass on is a portable bidet. It’s really a bottle with a long nozzle I got it from Amazon. I found spraying clean water so soothing tap dry with soft toilet paper and apply pile cream or sudocrem/ Vaseline really helped.
My frequency was the same and I tried to adjust the consistency with diet eventually I tried what my surgeon said. One 2mg Loperamide before bed. I know it says before food but that made my stools hard so this was a good option for me.
If I eat safe I know I’m okay when I overindulge I know I’m going to pay

The stoma Reversal support group are amazing

Ann
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Jdr7665 over 2 years ago in reply to Wellspring

Thank you Wellspring. I will check out the LARS section and I will also try anusol.

Jdr7665 over 2 years ago in reply to Artsie

Thank you Artsie. I did by a bidet for my toilet but need to hook it up yet. I will also look into the portable one. I am also going to ask my surgeon about the loperamide befor bed. Thank you!

Artsie over 2 years ago in reply to Jdr7665

No Problem.
Hope things settle for you.
Thankfully you’ve had a fast reversal three months is a great turnaround. My surgeon said that the faster patients are reversed the better the outcome.
Take care

Ann
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