Hello, I'm me here so forgive me if this topic has been covered before.
I had 1st colonoscopy end of July and was immediately told I had colon cancer. Complete shock asi have had bowel screening for 15 years! 2 Weeks later phone call to day biopsies negative, CT clear and blood test normal. 2nd colonoscopy at end of September and consultant believed my 30mm LST polyp was benign but could harbor malignant cells due to size.
2 Weeks later got a call to say the biopsy was "high grade" and a pre op booked for right hemicolectomy middle of November, following MDT mtg
️.
I am still waiting to see my consultant to discuss diagnosis , prognosis & treatment. I'm confused because my key nurse cannot tell me if the high grade is in multiple biopsy sites, is truly cancer or pre cancer.
I have seen that there is a treatment called ESD where the tumour is removed in one piece endoscopically thus saving the colon ( which I'm quite fond of & would like to keep
). This doesn't seem to be available in Wales & wondered if anyone else has had experience of this treatment and can give me any positive results. I'm so afraid I could wake up after the op and find everything was negative.
BTW I survived breast cancer 10 years ago and had lots of treatment so it isn't fear of the surgery but fear about my quality of life after.
Sorry this is so long but any advice would be great. Thank you everyone and good luck on your journeys.
Hello Marianne, thank you for your message. It is so good to hear such a positive outcome from the hemicolectomy and I am pleased to hear you are doing so well.
You're right that surgery would not be my first choice; having had breast cancer and numerous surgeries in the past I had hoped that I wouldn't have to do it again.
I guess though, my main concern, is that I have been struggling with urgent visits to the loo for over 2 years and I'm afraid that the surgery could make this worse, so it is great to hear your experience. But, if I'm honest so far no one has told me exactly what my diagnosis and biopsy results mean but the decision seems to have been made for my treatment️.
I am desperately trying to get an appointment with the consultant and if this doesn't happen soon I'll try to get a 2nd opinion, but even that's not easy as there is a delay trying to get my medical notes.
I'm trying to stay positive and really just want to understand what's happening and get my treatment started.
Take care and stay well. 
