Hi I’m new!

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Hello

I’ve recently been diagnosed with rectal cancer which came as a complete shock and surprise. I guess that’s the same for everyone here!  It’s just so overwhelming. 

I’ve had an endoscopy, MRI and CT scan so far and I’ve got an endorectal scan tomorrow. I will be having radio and chemo and a PET scan. I have a very supportive family, I guess I just want to chat to people who are going through this too xx

  • Hi LMG I have a similar situation had a colonoscopy a week before my 70th birthday and told of anal cancer so happy days. It certainly is scary at first (and 2nd and 3rd) but I can promise once you get a definite care plan it really does help as you can make plans and know roughly when to p!an other things around the treatment. I have had radiotherapy which didn't to go well for me but don't worry it's unusual to have a bad reaction as I did ( had to delay chemotherapy for a week) but start that tomorrow now.  Take any help you are offered whether from Macmillan or adult social care. Don't be afraid of the future to much your care plan will mean you can be accepting of what's to come ( I am almost certainly having an operation to remove tumour along with backside and a Stoma fitted) but if we have another lock down I won't care if shops run out of toilet rolls and think of the money I will save on them. I am getting a wet room put in soon as I can't climb into the bath for a shower any more (arthritis and enphysema don't help) .it's really important to let your partner/family know al! the details as they will be your best help but above all don't let despair get in find the silver lining which is always there somewhere.good luck

  • Thank you Summersdad - good luck

  • Hello LMG

    I was diagnosed with Stage 3 colon cancer - like Summersdad just days before my 70th birthday in June. Yes, it was a shock and my emotions have been all over the place. Did my best to stay positive, which can be an effort. I have had keyhole surgery to remove the tumour and am starting chemotherapy this week. I have a supportive family too, but it is really good to come on here and learn from everyone's experiences. 

    I hope all goes well for you xxx

  • I too had a similar situation came out of the blue for me. No symptoms however bowel screening came back positive. 
    I’ve recently finished my radiotherapy have problems with fatigue and pain down left side otherwise went well. Had sigmoidoscopy a couple of weeks ago and have responded to the treatment have another one in November.

    hope all goes well for you. My advice is take each step at a time and don’t look at doctor google.if you  need help speak to your team

    take care and I wish you well 

  • Hi,

    I have just completed 5 days of radiotherapy and the pain in my hip is worse than what is was before I started. Is this normal as I’m having  to take tramadol for the pain, 

    Cath

  • Hi Cath I also has 5 days intensive radiotherapy I do have a pain in my left hip and sometimes feel as though it will give way. But mostly I had extreme constipation which came on 2 weeks after and lasted for 2 weeks which meant I had my chemo delayed by a week . I am sitting in waiting room for my 1st session as I type this . Hope your hip gets better  be a bit carefull about painkillers I took co dydrsmol and made myself much worse. I should check with nurse or doctor just in case. Cheers David 

  • Hi David,

    Thank you for your reply and kind words.

    Ive called the GP this morning. I have recurrent bowel cancer and a tumour is in my sacrum hence the hip pain. 

    it’s inoperable and not curable so I would imagine the pain will get worse. 

    Hope you get on ok . 

    Cath

  • Hi faloola

    i had pain in my left side after intensive radiotherapy for over 12 weeks had various scans to see what was wrong nothing showed up. Consultant put me on tablets for ibs unfortunately came out in hives , taking nothing now and the pain is subsiding

  • Hi LMG 

    It’s a lot to process.I was all over the place and this was the worst stage. The not knowing is scary. 
    Once your team  have their MDT meeting and treatment plan decided it’s full steam ahead. Then you’ll be able to concentrate on that. The treatment is very individual and focused on the best for the patient so although I had rectal cancer my treatment was different to others here. I was in for an operation others have had treatment first then op some have op them treatment so it’s take care of yourself. Try and eat healthy and exercise a little if you’re able
    Take care 

    Ann
     ‍Art