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My husband was diagnosed with stage 4 bowel cancer almost 3 months ago, been very unwell since the beginning of this year after many doctors phone calls finally get to see a face to face doctor then got sent for many tests, the last one being an MRI this is the one that discovered the blocked in small bowel.

Was rushed in for major surgery removed most of the small bowel but found the cancer had spread to up abdomen liver and lower lung.

Shock was an understatement totally devastated my husband was in remission of 3 years for lukemia this what we was expecting to come back.

My husband is now on his 3rd round of chemo really struggling in pain sick and so uncomfortable,

I just feel helpless trying to stay strong give love comfort and encouragement to keep fighting.

Waiting for another MRI to see if we go further with more treatment my husband now beginning to feel it's not working my heart breaks I just don't know what to do or say.

Faloola over 2 years ago

Hi,

im so sorry you find yourself in this position. I’m the same boat but different the same time.

I’ve recently been diagnosed with stage 4 recurrent bowel cancer after being clear for 10 years.

I was told at first meeting as I had no symptoms I would be offered no treatment even though it’s not operable and incurable.

Cath

Auburn over 2 years ago in reply to Faloola

I'm so sorry to hear this will they not even try chemo.

My husband was at least offered chemo if it it works or gives more time is what we are hoping for.

I try and carry on with a normal life but it's so hard not to keep thinking what's going to happen next.

court over 2 years ago

Hi Auburn

So sorry to hear of the difficult few years you have both endured .

My mum gets really Sick on treatment and it’s hard not to think it’s disease progression as it’s hard to separate the two . Despite it making her sick it did a brilliant job .

Have you told his team how hard he is finding it . My mum got a small dose reduction which made it much more tolerable .
I definitely sounds as though he is needing a chat with his team .

Take care ,

Court

Helpline Number 0808 808 0000

Faloola over 2 years ago in reply to Auburn

Hi,

Oh I know mines is stage 5 incurable and not operable. But there is nothing I can do about it. After 10 years free of it the last thing I expected was it to come back but it has.

All I’m looking for now is as much time as I can get I’m greedy lol.

Cath

Auburn over 2 years ago in reply to court

Hi yes he did chat with them after the 2nd round of treatment and they mentioned that to him and to continue with sickness tablets regularly and to call when he needs to,

But I think he gets it in his head that it's not working that's why he feels so bad but he does keep trying to stay positive I just find myself saying the same things to keep him possitive but your right if he chats more with his team it will help him.

Auburn over 2 years ago in reply to Faloola

That's exactly what you need to do make as many happy memories as possible and hope you get as much time as possible that's definitely what keeps us going to think of more time and happy memories to create. It's just very difficult when he is having treatment and most days feels to bad to do anything but get out of bed.