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Hi. I’m new here. My husband has stage4 colorectal cancer and is undergoing chemotherapy at the moment. He was first diagnosed 5 years ago and had a bowel resection with a permanent stoma. We were coming up to 5 years cancer free but secondary’s were found on his liver in March. He has been on chemotherapy since May and the tumours have responded well. He was put on Panitumumab 6 weeks ago but has has had a terrible skin reaction. He is struggling a little with this but I keep positive and reinforce what we’re told by his medical team. 
Despite the positives I do feel down and that as a partner little attention is given to the way we feel. Occasionally, I get frustrated with my husband and can be a little irritated with him. This makes me feel like a real bitch. I don’t mean to be like that but feel under appreciated. Is there anyone else out there who feels like this? 

  • Hi CatFace1, I know my husband gets down just like you. I had bowel cancer 10 years ago and have been in remission since., I had surgery for kidney stones last year, should have had a follow up scan 3 months later but due to covid never got until July this year. Long story short as well as the kidney stones are back it showed abnormalities in my lungs abdomen and pelvis. Had a biopsy as the original consultant thinks it’s a new cancer and not a recurrence of bowel cancer with such a late presentation. I get the results on Tuesday and to top all that I have covid. I feel terrible I’m going to have to put my husband through all this shit again. He just retired a few months ago and he had big plans. So I know how you are feeling you are going through this as well. You’ve got this tho and don’t feel guilty for feeling the way you do. Sending big hugs to you. 

    Cath

  • Welcome to the forum 

    I think your emotions are probably reflective of most peoples here . Every emotion is amplified and inner resources become depleted the second time around according to my mum’s very wise surgeon .

    I know for myself the second year I felt more depleted. 
    Your health needs are different but you are living under considerable stressors . Our helpline staff would be happy to chat this through with you on 0808 808 

    Trust me you can be at this for the long term so taking time to work out how to manage this situation with more support around you is essential.

    Great his treatment is working . Some patients report getting a referral to a dermatologist to help manage the rash .

    Take care ,

    Court

    Helpline Number 0808 808 0000

  • Hi Court, update been to hospital for biopsy results. It’s a recurrence of small bowel cancer after 10 years not a Sarcoma as they thought. The last consultant said if they could shrink the Timor’s surgery could happen. This consult said no. So I’m confused. It’s stage 4 so I’m assuming it’s advanced. I left with a bad feeling after speaking to him he was quite downbeat. I have an oncology consultation this Friday. 

    Cath

  • Hi 

    Mum was classed as inoperable twice but had such a good response to chemo  it turned it around . Not once but twice .

    Hold on tight . Chemo can change things . Some are more encouraging than others but it does knock you for a few days . 
    But you really need to see how you respond . 
    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Thanks Court, I will take your advice and see what transpires on Friday. I asked him if it was going to kill me and he said yes. I asked if it was weeks or months he relied hopefully years.

    Cath

  • You know  two drs can deliver the same treatment plan in two completely different ways .  I currently have both parents in hospital and am amazed the difference the actual drs approaches make . Not to sugar coat but to give a broader scope of what some people are achieving.

    Delivery is everything. 

    My mum had a similar experience. It’s a very unpleasant approach.

    Court 

    Helpline Number 0808 808 0000

  • Hi Court, you are so right. I’m hoping the first one was right and if chemo shrinks the cancer they can operate and take them away especially  one at the base of my spine. It’s not my first rodeo but this one is certainly more  challenging. 

    Cath