No immunity

Hi Foffcancer

What you have written is so true , once you are onto the second year you realise you have to dig deeper yourself and build in more lasting support structures.

We are very much here for you and you might like to phone our helpline staff to discuss getting access to support structures around you  locally . 0808 808 0000 

I will link in information on the port . A lot of people find it much better if they are having more chemotherapy .

I will post this and get the information.

Court 

https://www.royalberkshire.nhs.uk/media/xvkn3cnc/implantable-port-portacath-insertion-removal_nov20.pdf

This is the nhs information . It’s inserted into a vein on the chest. It goes through all the pros and cons . 

The stop , starting of treatment is very frustrating . My mum had a few hospital admissions and it delayed things a bit . I did worry about the efficiency but it did not appear to be a problem in the end . It was frustrating trying to plan round it . It was my mum’s platelets that went really low . Then out the blue one week they were just suddenly higher .

I think it’s knowing when to be more cautious when his bloods are low and when you are more able to take a more balanced approach. Speak to his team too and find out when he is most at risk during his cycle. That will let you plan around it . 

The second year of chemo is a tough time as you realise there is a long haul approach and the adrenaline has dropped off a bit . But we were lead by the science . If her bloods were low we kept to the plan of being cautious but if they improved and on her less at risk period we created a bit of balance . Even if it was just a walk around the park with your own coffee in a mug .

I also think it’s important to take care of your own health too . It’s not something to be neglected or endured . You need support and care too . Speak to your GP if you need to . Going out for a coffee with a friend away from the situation is healthy for you both .  You can be very selective and sit outside if need be but you need some support too and again you can do this on the weeks his bloods are better .

How many rounds is he having ?

It was the second year my mum’s platelets went down . 
take care ,

Court 

He’s supposed to be having 6 but has had one so far he was given the option at the start of this round to have reduced chemo as they said he’s now incurable but he chose to go all out with the hope they are wrong and it will work. 

My mum did get back to a second liver resection . She had a further six chemos like your husband but after the second dose they dropped her Oxaliplatin by a small percentage. Made the world of difference to her side effects and her bloods held up . It was finding a more tolerable level for her . Maybe she was just fortunate but she got the same results and it was just a small reduction . They then removed 73% of her liver which was a bit hit . She was classed as inoperable at the start . You just never know .

Maybe he needs a good chat with his team .

Take care ,

Court